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Omg...i Might Be On To Something


Rachel--24

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jerseyangel Proficient
The powdered sugar at the health food stores usually does not have corn starch as an anti-caking ingredient. As always, check labels.

Thanks Julie--I didn't know that. Is it just plain powdered sugar then?

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miamia Rookie
Heck no...you guys are stuck with me! :D

Rachel will stay in Rachelville with the geese, dingos, bats and all her Celiac friends...heck we havent even gotten our magical koalas yet....how could I leave??

I dont know if this is gonna get me "all" better but I think its a big step in the right direction.

My ice cream is very very good. :D

Rachel-

so besides ice cream what are you eating now?

Miamia

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Green12 Enthusiast
I'm not feeling so hot, and it's all my own stupid fault. :angry: All the talk about ice cream earlier--I made some banana/chocolate chip/cinnamon ice cream (Vance's). I used confectioner's sugar instead of regular sugar. I had a nice bowl when it was fresh out of the machine--topped it with sliced almonds--it was so good! The bad news is that since about an hour after I ate it, I've been going back and forth to the bathroom :ph34r: . How is it that I didn't know that confectioner's sugar has cornstarch in it? :blink: Cornstarch <_<

So sorry Patti, a lot of you have upset stomachs, you, Tavi, Donna, Andrea, little Seth..I hope you guys all feel better real soon :)

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jerseyangel Proficient
So sorry Patti, a lot of you have upset stomachs, you, Tavi, Donna, Andrea, little Seth..I hope you guys all feel better real soon :)

I noticed that--a bad stomach day all around, I guess. :unsure:

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miamia Rookie

Ok I need some support from my rachelville coinhabitants. I had this great mini vacationa dn woke up today in the best mood. I don't get D when I get sick but the opposite and I was really scared flying would just kill me since it can affect normal people. But I woke up happy and then I went to the broom and was just on cloud nine( god the things that make me happy are so funny) Anyways Breakfast was fine but at lunce I got so sick I didn't have anything weird but I realized I used the same cucumber I ahd yesturday and yesturday I felt I was having a mild reaction to somehting and coulden't figure out what it was no I am sure it was th ecucumber. I feel so sick and have since 12 today . I am sos frustrrated because cucumber is the one thing that almost always sits welll with me . I'm alaways careful about where I buy tem and never buy them with that waxy crap on the outside. I feel so frustrated becaus ewhen I get sick from something like that I feel like I have no control over being sick at all. I was so happy this morning and felt like I had made a positive trun because it had been a few days without a major reaction to anything which is a big deal for me. I feel like I was just knocked back down.

Miamia

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Green12 Enthusiast
Thanks Julie--I didn't know that. Is it just plain powdered sugar then?

Patti,

Yep, just plain powdered sugar, but since it doesn't have the corn starch in it it gets a little clumpy. I buy mine at Vitamin Cottage, a local health food store here, in their bulk packaged store brand- so I don't know if you can find any in your neck of the woods.

Wholesome Sweeteners, a brand carried at Whole Foods and Wild Oats now has corn starch in it, (it didn't use to that I remember) so definitely read the labels. :)

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jerseyangel Proficient
Ok I need some support from my rachelville coinhabitants. I had this great mini vacationa dn woke up today in the best mood. I don't get D when I get sick but the opposite and I was really scared flying would just kill me since it can affect normal people. But I woke up happy and then I went to the broom and was just on cloud nine( god the things that make me happy are so funny) Anyways Breakfast was fine but at lunce I got so sick I didn't have anything weird but I realized I used the same cucumber I ahd yesturday and yesturday I felt I was having a mild reaction to somehting and coulden't figure out what it was no I am sure it was th ecucumber. I feel so sick and have since 12 today . I am sos frustrrated because cucumber is the one thing that almost always sits welll with me . I'm alaways careful about where I buy tem and never buy them with that waxy crap on the outside. I feel so frustrated becaus ewhen I get sick from something like that I feel like I have no control over being sick at all. I was so happy this morning and felt like I had made a positive trun because it had been a few days without a major reaction to anything which is a big deal for me. I feel like I was just knocked back down.

Miamia

I know how you feel! I had been feeling pretty well for the last couple of weeks and then today I made a mistake and bam! Definately knocked back down :(

I'm sorry that you got sick--I sure hope that it passes quickly. I understand how frustrating it is to have this happen.

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AndreaB Contributor
Thanks Donna, I am still not used to my name and it's been 49 years!

Here are the ingredients in the orange chicken I ate:

Vegetables : should be ok

sauce: water, orange juice concentrate, distilled vinegar, modified corn starch, dehrdrated garlic, partially hydrogenated soybean oil, salt, sucralose non-nutritive sweetner, dehydrated bell pepper, xanathan gum, sodium benzoate flavor, spice, citric acid, and extractives of paprika chicken white meat, water, modified tapioca starch, salt, sodium phosphate.

Does anyone see something gluten here? I don't have the package of the taffy I ate. The only other thing I ate was frozen yogurt from Dryers, praline and cream.

Man I forgot how awful this is.

Tavi,

I'm not sure. I looked at Dryers and the only frozen yogurt they list is with Praline is Caramel Praline Crunch which has modified food starch.

Have you had this dish before, the orange chicken?

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miamia Rookie
I know how you feel! I had been feeling pretty well for the last couple of weeks and then today I made a mistake and bam! Definately knocked back down :(

I'm sorry that you got sick--I sure hope that it passes quickly. I understand how frustrating it is to have this happen.

The frustrating thing is I really want to try out new foods to create more variety in my diet but I can';t when I am having a reaction becasue then I just react to everything. I hope this passes quickly. I'm sorry you also had a reaction - God I wish it wasen't food that we had to avoid - Imagine if it was just those spiders- now that owuld be easier

Miamia

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AndreaB Contributor

Miamia,

Are you sensitive to msg too? I hope this clears up for you quickly. Don't let it get you down.

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miamia Rookie
Miamia,

Are you sensitive to msg too? I hope this clears up for you quickly. Don't let it get you down.

God Andrea I think I may be sensitive to everything!!!!I don't know what to avoid anymore

miamia

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Daxin Explorer

Lots to catch up on.

Vinecnt -- appranetly, we make up words in Rachelville all the time, so I guess we are not too worried about spelling.

Here is the updat on our son -- DW and I are not all evil like he says...we had an hour long meeting with his psychologist today, and when she double checked her math, he is on TOO SMALL a dosage for his medications....that could be causing the mood swings. He is still moody today, but we are going to let him get it out of his system, and get some sleep and we'll see. I also am trying to get him on the Gluten Free diet as I hear it does wonders for kids with ADD/ADHD.

I am at work tonight---stupid shift owrk---stupid air traffic shifts---- :angry::angry:

Talk to you all soon!

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Camille'sBigSister Newbie

I'm premature posting (Learned that from Susan.) because I checked in very late today. Blame it on the cafergot, which destroys the migraine but puts me to sleep. I have read far enough along to catch up with all your good wishes for me. You are all so kind, and I love you! Whoa! What? Crushed ice? Lord have mercy! I never thought of that! How dumb can I be? :blink::blink::blink:

TAVI - what a lovely name! Is it pronounced Ta- (short "a" as in ah), and vi ("i" as the European "i" pronounced as the long "e" sound in Peep)? Accent on the first syllable?

Tavi, our entrenched bum. Love it!

Cissie

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VydorScope Proficient
Lots to catch up on.

Vinecnt -- appranetly, we make up words in Rachelville all the time, so I guess we are not too worried about spelling.

Here is the updat on our son -- DW and I are not all evil like he says...we had an hour long meeting with his psychologist today, and when she double checked her math, he is on TOO SMALL a dosage for his medications....that could be causing the mood swings. He is still moody today, but we are going to let him get it out of his system, and get some sleep and we'll see. I also am trying to get him on the Gluten Free diet as I hear it does wonders for kids with ADD/ADHD.

I am at work tonight---stupid shift owrk---stupid air traffic shifts---- :angry::angry:

Talk to you all soon!

Daxin,

gluten-free diet does wonders for some ADHD cases. It depends on the root cause of the ADHD. In some cases its a physical issue that can be corrected, in others it is a mental issue that can only be learned to cope with as it can not be fixed.

In my case ithe gluten-free diet does absolutly nutin ( I have been DX with ADHD by two indepent docs). Another thing to check besides gluten is food dyes and addtives. Many ppl react ot them and they cause ADHD like symptons. Also should check for Anemia, that could also cause ADHD like smptons. Another thing to check is Autism, esply AS. Its offten misdiag'd as ADHD and unfortunitly the ADHD meds do nothing for it. ( I think this is my case acutally as I did Ritilan and Concerta for a while and realy did not help).

Just some tips from someone that understands the ADHD world by personal experence.

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Camille'sBigSister Newbie
OMG....Donna I need your help!!

I'm still having problems with these "biting" ants. No more being nice and swatting them away....I wanna squash these suckers right into the ground. :angry:

What the heck is going on?? How can regular black ants bite or sting me like this?? I'm finding the whole thing to be rather disturbing. These are some very mean ants. <_<

They are in a very bad mood! The heat has affected their wee brains, you see. Sprinkle a line of boric acid across doorways and/or windows, wherever they can gain entrance to your peaceful abode. :angry:

Cissie

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Fiddle-Faddle Community Regular

My son's Asperger's symptoms overlap quite a bit with ADD/ADHD. He seems able to handle gluten and casein, but what works wonders for him is a scheduled day, with lots of exercise (bike rides after school, Tae Kwon Do twice a week, etc) scheduled in. Swinging on the swing set for ten minutes before school makes a big difference in his day. When he was very little, we got the school to agree to give him a break twice aday to walk around the school for five minutes.

I would like to suggest that in Rachelville, recess NOT be immediately after lunch!

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Rikki Tikki Explorer
Tavi,

I'm not sure. I looked at Dryers and the only frozen yogurt they list is with Praline is Caramel Praline Crunch which has modified food starch.

Have you had this dish before, the orange chicken?

No I have never bought this chicken before, I just saw it at the grocery store and bought it because it looked ok. I am not sure, what about the distilled vinegar? I think I just won't try anything new. I am not sure about the frozen yogurt, I had thought all of their stuff was gluten-free except for the one's we would know weren't like cookies and cream and cookie dough. I usually but the regular ice cream so I just don't know. I can't believe I was so careless, I should of known better than that. :unsure:

I'm premature posting (Learned that from Susan.) because I checked in very late today. Blame it on the cafergot, which destroys the migraine but puts me to sleep. I have read far enough along to catch up with all your good wishes for me. You are all so kind, and I love you! Whoa! What? Crushed ice? Lord have mercy! I never thought of that! How dumb can I be? :blink::blink::blink:

TAVI - what a lovely name! Is it pronounced Ta- (short "a" as in ah), and vi ("i" as the European "i" pronounced as the long "e" sound in Peep)? Accent on the first syllable?

Tavi, our entrenched bum. Love it!

Cissie

Thank-you Cissie, Let's see I think you are saying it right, it would be the short a and vi sounds like a long e. My mom was reading a book and came across the name, it was actually a boy's name. The book was The Far Land, but I lost my copy years ago. I believe the man that gave her the book was George Boothalee or something like that, think he moved to Oregon someplace. I don't know why I am giving you that history lesson. Must be the gluten! :huh:

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Camille'sBigSister Newbie
Susan, many wise words spoken. I'll add a story about my grandmother. About a month before she died we were having tea and I said to her, "do you know what I figured out Gramma" and she said "what?" and I said between birth and death there is just this one breath". She looked at me and her eyes kind of went "clang, clang, clang, like a cartoon character in a funny way, and then she laughed and she said, "that's true". So, a month later she went travelling and she went off her medication and she fell ill and died but not before 15 family members travelled to be with her and spent the day weaving a net of love that lifted her away. Twice she stood, after hours of nothing but death rattle for breath and announced she was going to her Lord. :)

Only in this breath do we have the opportunity to express our deepest heart, the past is gone, the future is not here. Please do not be too hard on yourself, the fact that your family loves you says much about the person you truly are and not the misery laid on you. :)

Profoundly beautiful story, well told, Rinne.

Cissie

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Camille'sBigSister Newbie
Well, I have to agree. Our teachers on this board can probably chime in as well. Home Economics is gone for most schools. Schools are being forcrd to cut out programs such as art, music, home ec, etc over athletics. Due to high demands of organiized sports most children today cannot be just that CHILDREN.

Pardon this rant butt ....

Too many bloody parents think their children are the great athletes of all time and will 1) get a college scholarhip or 2) go pro. I cannot stand some uneducated parents on the sidelines of an 8 year old soccer match yelling at a 12 year referee. I get very mad and I want to smack the parent.

Too many "coaches" do not know what the F#$% they are doing. They read a book and think they "know" how to coach. Very frustrating. Team sports are supposed to show children how to work together and accept an outcome -- win or lose - -

Pardon the rant ...

Rave on, MacDuff!!! When you're right, you're right!

In my capacity as Distinguished Chair of Literary and Historical Oddities Department at UCCF, I bring to the attention of all citizens of Rachelville that there was a time, within recent memory, when children actually played. Alien though the concept may be to modern minds, children were not organized into structured activities, supervised by politically correct adults. Yes, dear ones, it's true; children once enjoyed the freedom to play as they pleased, and what's more, (I hope you are all sitting down.) they had FUN!

As you may have surmised, I was one of those children. We went bare-footed all summer; we climbed trees, hung from branches, and built tree houses from the planks of fallen fences; we grabbed hold of sturdy vines and swung down mountain sides; we played Capture the Flag, Crack the Whip, Mother May I, and Aunt Dinah's Dead; on extremely hot days we played Monopoly on a shaded porch; we played Pirates, Gypsies, Cowboys and Indians, and Little House on the Prairie - from the books, not from the TV adaptations; we pulled wagons along neighborhood sidewalks, collecting "tin foil" to support the war effort; we rode bikes and skated on those sidewalks, suffering our scrapes and bruises as just temporary nuisances; we played impromtu games of softball with scruffed-up balls and falling-apart mitts, and if our quarrels broke up the game, our mothers didn't rush out to impose peace; and sometimes we did the unthinkable - the thing that would raise horror in the minds of today's grownups - sometimes we lay on our backs in the clover, gazed upon the sky and clouds, AND DID NOTHING AT ALL!!!!! :D:D:D:D:D

FREEDOM, SWEET FREEDOM!

Cissie

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Guest Robbin

Folic acid--that seems to be in most supplements-hmm-must be why vitamins of any kind make me feel sick-could be some of the problem. I force them down to get the nutrients, but maybe shouldn't be doing that.

EDITED :) FOR TOPIC RELEVANCE

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AndreaB Contributor

Cissie,

I would love times like that. That sounds like a lot of fun, excercise, as well as healthy sunshine and fresh air.

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VydorScope Proficient
My son's Asperger's symptoms overlap quite a bit with ADD/ADHD. He seems able to handle gluten and casein, but what works wonders for him is a scheduled day, with lots of exercise (bike rides after school, Tae Kwon Do twice a week, etc) scheduled in. Swinging on the swing set for ten minutes before school makes a big difference in his day. When he was very little, we got the school to agree to give him a break twice aday to walk around the school for five minutes.

I would like to suggest that in Rachelville, recess NOT be immediately after lunch!

Yes exercise release andrenile and its an all natural stimulant that helps wth alot of mental issues. :)

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Rikki Tikki Explorer

Tavi-love your name-I think of rikki-tikki-tavi when I see the name. I don't know what the book is called, but I remember one of my kids read a book with a character called that. What a lovely name it is, you lucky bum. Geez, pretty much

I think that was the book rikki tiki tavi book from the Jungle Book and the mongoose was Tavi. I know I have heard that for a long time.

I am going to go lay down, I really don't feel well. It looks like the streets of r-ville might be rolled up so I am going to meander over to the park bench, pull my straw hat over my eyes and take a nap. Thank-you for all your kind words.

night

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Guest Robbin

'Night All :)

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Fiddle-Faddle Community Regular

Hey, if there are any computer geniuses here, how about making Rachelville the next Runescape? :)

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    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
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