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Diagnosis & Recovery, Related Disorders & Research

Forums in this area deal how to get diagnosed and treated, and how to recover from celiac disease. This area also covers related disorders research.

Forums

  1. Coping with Celiac Disease

    Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.

    178,466
    posts
    • Scott Adams
    • 1 Week Gluten-Free And I Have The Worst Gas Please Help!
  2. Celiac Disease Pre-Diagnosis, Testing & Symptoms

    If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

    134,281
    posts
    • JustGemi
    • SCARED: What Do These Test Results Mean?
  3. Post Diagnosis, Recovery & Treatment of Celiac Disease

    Discussions related to the recovery process after you've been diagnosed.

    75,415
    posts
    • Scott Adams
    • Went to see a gastroenterologist today and
  4. Related Issues & Disorders

    Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.

    73,692
    posts
    • Scott Adams
    • 25 year biopsy confirmed/ate pizza with no ill effects?
  5. Dermatitis Herpetiformis

    Discussions concerning the skin condition associated with celiac disease.

    16,545
    posts
    • Scott Adams
    • Could this be dermatitis herpetiformis? Pending celiac test results.

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  • Posts

    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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