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Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Parents of Kids or Babies With Celiac Disease
Kimnash
Hi. I am new to this site and I need some help. I have a son who is 7 has Asperger's and ADHD we have tested for allergies and Celiac both were neg. My 4 year old seems fine but then we get to my 1 year old dau. she is very allergic to MILK, EGG, WHEAT, OAT, BARLEY, RYE, BUCKWHEAT, GLUTEN, SOY, TOMATO, POTATO, PEA. PEANUT, CARROT, FISH, SHELLFISH.
I am finding it impossible to feed the poor child. She has not been tested for Celiac I don't know if I should ask for it or not since we already know she is very allergic to Gluten. I have her on a elemental formula Ped. E028 and she does well on it but she needs real food. Having the older two children does not help matters since they want PB&J sandwichs on Whole Wheat Bread (thought we were good parents and started the kids as babies on whole wheat instead of white).
I have looked at a few cookbooks but there never seems to be a receipe that I can use that is safe for my dau. Can anyone tell me what to do or if there is a cookbook that covers all of her problems out there? Right now I have been giving her cooked meat and chicken (doc. wants to take her off Chicken to see if that is giving her leg rashs) I have also found a puffed corn cereal from Arrowmills I think that is ok. PLEASE HELP. Kimberly bkcjnash@yahoo.com
bluelotus
Do you use Rice milk? Lundenberg farms makes some, but check the ingrediants - I know they are corn, dairy, and gluten free (my problems). Try Enjoy Life products - they make bagels, breads, cereals, cookies, and snack bars. You can find them online. They don't use the 8 common allergens or corn or potato. Applesauce can be a great snack - Organic Wholekids Apple and Peach sauce is very yummy. Is she allergic to all nuts? There are so many other nut butters out there too to make sandwiches with. Ener-G brand (though not my favorite) makes items that can help with various allergies. They are online too. Check Nana's gluten free cookie bars - they don't use soy or corn either, but I can't recall the other ingrediants. Home made hamburgers might be nice for her with veggies and ketchup/mustard (Annie's naturals makes gluten-free sauces/condiments, though check on other ingrediants) - then again, I don't have children, maybe they don't need/use condiments?. Turkey may be another option, though not sure if that causes a rxn in people with chicken allergies. Will try to think of more ideas for you.

It might be nice to test your daughter for celiac, just so you know for future information/issues. celiac disease has been linked to other health problems (thyroid problems, skin problems, sore joints, mental health issues, tooth enamel probs., etc), so if a doc knows she has celiac disease, it may make future diagnosing easier. Then again, none of those health prob.s is quarenteed, so don't want to cause you more anxiety. Anyway, good luck.
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