Hi everyone,

I keep thinking that there is more going on with me than just the celiac, especially because of the lack of periods and high prolactin. My doc did not run too many tests on me, so should I be concerned??? It drives me nuts to not know 100% why I don't get my period.

SKAR

Skarlet,
You have high prolactin levels? Have you had a ct scan lately? How about an ultra sound of your ovaries? Hopefully your doctor can help you get to the bottom of things. Hope you're feeling better soon. Take care.

Hi nogluten,

No...I have not had either, and am beginning to question why my doc hasn't ordered more tests. I think I'm going to get a second opinion b/c this just doesn't seem right to me. The prolactin has been high twice, but was down on my last visit. I still, however, do not get my period. Can celiac really account for all of my problems???

Skar.

I've had celiac disease for 9 years and the problems I had with my cycles were unrelated. My dd (non celiac disease) was having problems with hers and had to go to three gyns before finding out she had PCOS. Is your dr a gp? Do you have a good gyn? I have found that my gps would kinda gloss over any questions or pains I was having related to my cycles. Turns out I had major fibroids which were found when I had my total hysterectomy. What I'm trying to say is that if you are concerned but your dr. isn't addressing your concerns, please get a second or third opinion.

I have always had trouble with my periods, too. I got my period twice before I tured 20. Doctors tend to freak out about this kind of stuff so I've been on the pill ever since. I'm starting to wonder if it's celiac-related because I remember having celiac-type digestive problems back into high school. I was just diagnosed a month ago so I haven't gone off the pill yet to see if the gluten-free diet helps it.