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Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Parents of Kids or Babies With Celiac Disease
chrissy
one of my twins has lost 3 1/2 lbs in just over a week. ( 1 1/2 lbs in 2 days) our ped gi is on vacation for a week. i don't know how to get and keep weight on this child. she had gotten up to 81 lbs, but is now down to 73 1/2. she has once (that i know of) cheated on the diet and ate 5 pieces of a toxic cereal. i explained to her that a crumb is too much. she also picked m&m's out of a cookie crumb filled bowl---even though her twin told her not to. would these contaminations cause her to lose weight? she has also gotten rashes back on her elbows.
christine
Nic
QUOTE(chrissy @ Mar 20 2006, 05:35 PM) *
one of my twins has lost 3 1/2 lbs in just over a week. ( 1 1/2 lbs in 2 days) our ped gi is on vacation for a week. i don't know how to get and keep weight on this child. she had gotten up to 81 lbs, but is now down to 73 1/2. she has once (that i know of) cheated on the diet and ate 5 pieces of a toxic cereal. i explained to her that a crumb is too much. she also picked m&m's out of a cookie crumb filled bowl---even though her twin told her not to. would these contaminations cause her to lose weight? she has also gotten rashes back on her elbows.
christine

Hi, are your sure she hasn't gotten into anything else? I know it can be tempting for children to cheat. Also, did she have any symptoms after she cheated? I know that having "D" can cause weight loss as well as the malasorption. I am not sure though if such a small amount can cause such drastic weight loss. I would call your Pediatrician since your GI is on vacation (or maybe he has a covering doctor).
ryebaby0
I'm assuming your peds GI isn't practicing alone -- I'd call the office and ask them for another doctor there to give you an opinion, or call your pediatrician. But it seems to me that yes-- being glutenated could cause that much weight loss if she has D. Try rice, bananas, chicken, applesauce, and chocolate Ensure until she is gaining again, and lock up the forbidden foods if she's a cheater. (Peanut butter is another thing with lots of calories, if she's not allergic; milkshakes are good too)

joanna
ms_sillyak_screwed
Don't feed babies SOY! NO matter what the doc says.

I added this post last night PLEASE take a minute and READ. SOY IS POISON!!

www.glutenfreeforum.com/index.php?showtopic=15577

I pulled up the ensure web site and looked up what is in it. click on the link to read for yourself.

http://ensure.com/products/index.aspx
Claire
If she can have dairy give her gingerale and light cream to drink - once or twice a day. It is an old remedy that came from a doctor back when doctors didn't always reach for the prescription pad. My frail aunt was given this and though she stayed thin she weighed about 90 pounds - compared to the 75 pounds that she was before. Claire
e&j0304
My gluten intolerant 3 year old has been drinking soy milk for the past 2 years. Now I'm starting to freak out. My little guy drinks it too. Do I really need to be worried about this?

My dd had her thyroid tested in Aug. and her TSH was 2.75. They said that was normal. She had another test too that was supposedly normal.

I guess we should try to get her onto a different milk. It's hard when they can't handle dairy and Rice Dream contains gluten...

Shannon
ms_sillyak_screwed
Read all labels...

I don't have kids so I'm really clueless. Many here know a lot more then I do. But I would stay away from soy at all expense.

I created a web site for my local celiac disease support group and I posted this link on their site. I don't know what they say about soy but take a peek. www.naspgn.org/


Oh I did read something about BANANA BABIES scroll down and look for banana babies.


M&M have milk in them I know because they were my all time favorite candy I can no longer eat.
jerseyangel
QUOTE(e&j0304 @ Mar 20 2006, 11:44 PM) *
My gluten intolerant 3 year old has been drinking soy milk for the past 2 years. Now I'm starting to freak out. My little guy drinks it too. Do I really need to be worried about this?

My dd had her thyroid tested in Aug. and her TSH was 2.75. They said that was normal. She had another test too that was supposedly normal.

I guess we should try to get her onto a different milk. It's hard when they can't handle dairy and Rice Dream contains gluten...

Shannon

Shannon--I use Vance's Dari free--it's a potato based milk type beverage. It's very good--I know some others on here use it for their kids. I can't handle soy or rice, so it's been great for me.


http://www.vances.com/index.asp?PageAction=VIEWPROD&ProdID=6
jaten
Being an adult, I don't know that my experience would equate with your daughter's, but yes, being glutened (and for me 5 pieces of cereal would be a severe glutening right now), I get thrown back into malabsorption and drop 3-5 lbs over the next few days. (This is regardless of the severity of the D)

3-5 lbs for my body is a different percentage than for your child, but if 5 pieces of cereal would do this to my larger body, I would imagine it could do the same to her smaller body. I don't know, but I'm supposing that as I get further out in my recovery, I won't be tossed into malabsorption as quickly. (Seems reasonable that once healed, and no longer teetering on the edge of what was complete villi atrophy, the damage would not revert so quickly, but again, this is just an asumption on my part.)

Good luck to you and your little one.
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