Hi! My daughter is going for her 6week follow-up appointment with her doctor. She was dx in January by biopsy. She definetly feels better since going gluten free but still has some bad days. I was just wondering if there are any questions I should ask. I already have a list that includes Lactaid use,vitamin supplements, second endoscopy. I am new at this so anything anyone might think of to ask would be very helpful. Thanks-jackie4

Sounds like you have a good doc if you have a list of those things I think ask any questions about the diet, but most importantly, explain the bad days to the doctor and tell him or her how often they are. I had lots of bad days still in the beginning.

The more info you can give them, the better. You could form it as a question like "Is it normal that..." That way they won't feel like you are asking them about something new or wanting them to solve that specific problem separately - you are just asking if it's a normal part of recovery.

They're used to talking about poop and stuff, so I would say, this many times a day, this is what it looks like, she's in pain this often on this part of her belly, etc. A lot of the times they would ask me if I had D or C or normal, and I was just like, I don't really know what the definition of those things are anymore! When I thought I had C cause it was painful, I finally described it as so many times a day, and they were like, that's not C! I was also afraid to make it sound like I wasn't feeling better b/c I was afraid they might change the dx, which I didn't want. I shouldn't have been afraid though - they need to know everything.