After my Dx i started to get this burning/acid churning going on in my stomach. I never had a problem before with acid or reflux...it all started after i went gluten-free, anyone have this problem too?!!?
Im taking prilosec for it now which helps but I wonder why this happend in the first place....i thought it could be due to the diet, even my GI was baffeled, but he doesnt think it related to the celiac... i thought things were supposed to get better, whats going on here?

Yes--I never was troubled with reflux before. I've been gluten-free since last June and started having the reflux/gas/burning in December.

could anyone explain what it was? or did they just put u on a med?

My GI, as he was closing my folder and heading towards the door, told me it was gas in my upper abdomen and to take Phazyme. I asked my GP the last time I was in and she nodded in agreement and said Phazyme is what she would suggest, too. So, there ya go--I won't be much help. But I would also be interested in what others have to add.

I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened.

Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( )...nothing seemed to help.

I sleep on a pyramid of pillows (I don't think I need it now, but it's habit), and I take antispasmodics (I use bentyl as needed) when it flares up.

I don't get it as much since going gluten-free, so I'm not much help for you. Has your dr ever given you antispasmodics?

has that helped u? and r u still on it? i dont like taking prilosec, even though it makes the burning go away

My doctor did give me antispasmotics--I have Neulev and Pamene. I thought those were for the D type cramping?

Moongirl--it does help a little bit--kind of gets the gas moving.

oh yah, we tried Levsin once, and boy the side effects were awful, i said id rather deal with the pain!

I didn't do well on the Levsin, that's why I have the Bentyl. I think it works better and faster, too. My dr originally gave it to me to yes, stop the D cramping, but also to stop the digesting-glass pain in my actual stomach. It was a nice (and effective) change from the narcotics the dr would thow at me.

It was a clue to the dr when the bentyl didn't stop the daily D.

Now I'm on it as needed instead of the originally presrcibed 4x per day, every day. I only take it a few times a week, and usually only if I've been glutened!

Geesh--shouldn't be surprised the doctor didn't tell me I could use the antispaz. for this . Thanks!

I only get the burning sensation after eating gluten. After eating gluten for a year from a gluten challege my stomach lining was raw. Dr said it is from excess stomach acid that is produced due to sensitivity/allergy. I have a wheat allergy as well as gluten sensitivity. Once I stopped gluten the burning went away in a week. When I accidentially eat gluten it comes back the next day.

I've had this burning stomach and nausea since February. I've been gluten-free since Sept. 2004. The same thing happened to me last year around the same time, and it lasted for several months. My dr. doesn't think it['s related to celiac, but after several tests, he says he really doesn't know. I'm taking Zantac 150, but it doesn't help much. I never had this problem until I went gluten-free! It's a mystery.

I have a large Hiatal Hernia as well as gastritis which is the cause of my burning and reflux.

I take Prilosec twice a day, morning and night...that seems to really help. Also sometimes a zantac when in real need.

Lisa

Lisa,
I've tried Prilosec, but it gives me a giant headache. Also, I've read that once you start using the PPIs, that you can't stop. I feel like Zantac is an "old" medicine, with not so many side effects.

I have had the same burning, sharp pain in the stomach for quite a while (years) but it did seem to get worse after going gluten-free in January. It didn't stop until a couple of weeks ago when I got my last test results back and found out I was casein intolerant. I never was a milk drinker and thought I was lactose intolerant, so I ate cheese. (LOVED cheese, sniff) Well, I stopped all dairy now and I have to say, with the exception of an accidental gluten incident (still learning), the acid/pain/gas/nausea has stopped. I sincerely hope that my giving up cheese will help others 'cause it has helped me, but oh, do I miss it!!! Try going completely dairy free and see if it helps you. Just a thought

For me, stomach burning has always been the indication that I've eaten something that disagrees with me. It stopped for a couple of weeks when I went gluten-free then resurfaced. For me, it's a good indicator of me being intolerant to something. Like Robbin, cheese was also a problem for me. I too have never liked milk - have always known I can't 'stomach' it and remember mum thinking I was being fussy about milk as a child - but I adore cheese, so miss it loads too However, it's worth it to feel better