Hi everyone,

I was just diagnosed with celiac about 2 weeks ago, and have been gluten-free since. However, I think I'm feeling worse! The diarrhea seems to be worse, cramps, I feel exhausted, etc. Has anyone else encountered this?

I've avoided all gluten, but am aware that there has probably been some accidental glutenings. However, it has to be close to nothing and I thought I'd be feeling better by now.

Any advice, help, support?
Thanks, Dinah

I have been gluten-free for a year. My D is gone. But now i suffer from C, bloating (really bad!) and im nauseous 24/7... the nauseous feeling is the worst and for me it NEVER goes away. I have had a couple glutening incidents, but after a couple days im back to normal- or what is normal for me (the symptoms i listed above). It wont go away, after a year. And no dr. has been any help to me. I feel like i cant go on to the next day sometimes to be honest with you. It's gotten so bad that I dont ever want to leave the house b/c i feel so sick. It's horrible. Sometimes i wonder why i stick to the diet when im not 100% better. But hang in there, most people dont have the problems i do. I couldnt be so lucky to have everything just go away... But you probably will, it takes time!!

oops- i didnt see that you said its only been 2 weeks. its definately going to take you longer than 2 weeks to feel better. and youre not going to get better until youre completely gluten free. a couple little incidents within those 2 weeks is going to make you sick for sure! itll get better, i promise!

It took your body a long time to get this sick, it's going to take time to get healthy. Right now your poor body is going through a lot. YOu might want to consider giving up dairy, especially at the beginning. Just keep your diet simple for now.

Im pretty new to this myself, (was diagnosed 3 and a half weeks ago). The first week after going gluten free I felt SOOO!! great, but that didnt last long. Most likely do to cross contamination and some accidental glutenings. Check for other allergies, check your meds and vitamins very carefully to. I was talking a digestive enzyme and unbeknownst to me it had barley grass in it and back came the constant nausea and dizziness. It set back my recovery time back about 2 weeks.

-kerissa

It was the same for me. After going gluten free, I felt great...as long as I was actually gluten free. Especially during the first year, gluten accidents were common. This translated into a roller coaster ride of feeling good, then getting glutened and feeling really bad, then slowly recovering, then feeling good, then getting glutened, etc. etc.

Judging from everything I've heard from other celiacs, lots of people have rough going in the beginning.

In what way are you feeling worse? Are you depressed? It's hard giving up everything you have loved to eat your entire life.

How strict is your gluten free diet? You might need to give up dairy so things can heal...

Are you drinking beer or alcohol?

You might have other food sensitivities or allergies. Some have problem with corn, legumes (the bean family) and SOY. Oh and veggies called 'deadly night shade' too. They are like eggplant, potatoes, onions, peppers and more.


I drink (baby) PEDILYTE when I feel really bad. It helps restore the lost elecrolytes and balance them. It helps me a lot.