Just wanted to let all of you know that my baby girl had a wonderful gluten free first birthday. Because of her heart surgeries, I made her a gluten free heart shaped cake with pink cream cheese icing. It was delish! She couldn't eat any because of her gagging issues, but she had fun playing in her cupcake. Thanks for all the support over the past few months. She's doing so much better now that we're gluten-free.

We went to a feeding clinic yesterday and her dietician's mother-in-law has celiac disease. It's so awesome to have someone who understands to help us at last! Just had to share my excitement!!! The new dietian has also found something called Compleat Pediatric, which is something we can give her by her feeding tube to increase her caloric intake and put some weight on her before surgery. I hope it works since all the formulas made her sooo sick. This is basically blenderized whole foods like beef and carrots, etc. The only thing she has tolerated so far is breast milk and my supply is falling off.

We also got a call from Vanderbilt today and the next sugery is scheduled for August 15. Please keep her in your prayers.

Gotta go get the little princess into her bed. She's snoozing in her swing at the moment after a long day of partying!

Happy birthday to your little princess, I'm so glad her party was a success! Yes, I will keep her in my prayers.

How nice for her to have a good birthday!

I'm glad your sweet angel had a wonderful birthday!

August 15th, eh? That's my anniversary! And her and I also share the same birthday! I definitely feel a connection happening here!

Hugs.
Karen

Glad to hear she had such a nice birthday! Hope the new food is successful. August 15--I will remember her in my prayers.

Keeping your family in my prayers!

You got it! And dont forget to email me if we can help you out....

So happy she had a great birthday and she will have many more to come. Ones where she will be able to eat her gluten-free cake.

Your little princess will definately be in my prayers.

Danielle

Glad she had a good day.
Wishing you all the best for her surgery in the summer

Happy Birthday to your sweet girl!! Congrats on finding a dietician who can truly help you!

Thanks so much. You guys are so sweet. I'm so glad I have all of you to vent and be happy with!