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Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Pre-Diagnosis, Testing & Symptoms
Newbiestudent
Hello to all,

I have read around all of the forums and finally decided to drop in. I really think I may have celiac disease but I have been throwing around this idea for a couple of years now. So my story is that I have the atypical symptoms like bloating, gas, foul smelling @#@*, irratablility, headaches, fuzzy headed, joint pain, and the ability to loose and gain weight at the drop of a dime. I can even remember as a little girl having horrible tummy aches that would happen sometimes. I would get severe cramping all over my tummy(lower and upper) and I would be on the toilet for literaly an hour and my mom would have to bring wet rags to me, "Oh soo painful". I have had bad joints ever since highschool. My wrists ache so bad these days and if I sit for long periods of time, I tend to almost collapse upon standing from the weakness and pain in my hips. My Grandma (RIP) had problems from what I can remember and she had that skin rash dermitits H. My mon has had a polop removed and has som GI problems. So I am going to for sure go to the doctor and get the blood work done, but if that comes back positive I am simply going to try the gluten free diet after that to confirm celiac disease. Oh and I had been confirmed before with hyperthyroidism, and I took medication for that and got it under control. So every year I get my bloodwork done for that. I wanted to share my information with you in hopes that you can sympathize with symptoms and life situations that I have had and maybe tell me if you have experienced anything similar. I have also read about Candida, and I thought that some of my symptoms are similar to those as well....and then I saw that one of you mentioned Lyme Disease....what is that? I also read that one of you said that after consuming gluten your first initial symptom was dry mouth....me too....is that common? The pain I get is mostly my left side of my stomach and it feels like huge bubbles moving around and popping, then later gas will follow. I now am consious about how much wheat products I eat but before when I didn't think about I remember I have gone like seven days without going to the restroom, I was miserable, but when I would go it would be the opposite, D really bad. Any insight would be great.
Oh and does anyone know if your lady doctor, or like planned-parenthood run a celiac panel, because I do not really have a family physician or doctor to go to. How much does it cost to get the blood work done?
Thanks in advance for all of you that reply
P.S. I am sure my spelling is horrible, sorry.... wink.gif
CarlaB
Be sure you are still eating gluten until the testing is done.

You would need to go to a primary care doctor for the celiac panel, then a GI for a biopsy if you get one. Maybe there's a clinic near you that you could go to.

Lyme Disease is caused by a tick bite. It's symptoms are very similar to celiac's symptoms because both are systemic diseases. You can learn more at these websites www.lymenet.org, www.canlyme.com, www.ilads.org, and for testing www.igenex.com.

Welcome, and I hope you find some answers soon!
mftnchn
Welcome! This is a good place to ask questions and get support. My story isn't so similar, but I did have a lot of allergies and then joint pain that turned out to be lyme disease. That's under control but just discovered the gluten problem.

Your journey will be unique and so you uniquely contribute to this forum. At the same time many will relate to you and can offer ideas.
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