QUOTE(KarenDianne @ May 27 2007, 04:39 PM)

OK - everyone's recipes sound wonderful but all seem to have things in them that I can't eat like cream cheese...how can a celiac eat cream cheese?...anyway, today I finally tried a gluten-free pancake mix, added egg substitute, soymilk and canola oil according to directions - couldn't wait because I really miss my pancakes...it kinda looked like a shiny tortilla...and was kinda crispy on the outside and not thoroughly cooked on the inside ... Also since I don't like maple syrup and think regular syrups bother me because of preservatives (although I love syrup), I just had butter and strawberries on it. It wasn't exactly tasty, unfortunately...I'm getting very frustrated. After losing 18 lbs. I really cannot afford to lose any more - I'm down to 110. I know some people wish they could accomplish this...but for me it's not good. Yesterday I thought I ate all gluten-free foods and late afternoon I got all the yukky stuff and was miserable all night long - layed in bed with a heating pad on my stomach...yuk! It's difficult to have more than a couple good days in a row even when I only eat "safe" foods, it seems...If anyone could help, it'd be great. All I can eat is chicken, veggies, fruit and gluten-free bread. I'm also lactose intolerant...and right now...not very tolerant of any of this...getting pretty depressed. Thanks for your help!

KarenDianne
Hi KarenDiane,
First of all, I'm so sorry you're frustrated with the diet. My daughter has been gluten-free for a year now, and it took her 8 or 9 months before she could tolerate lactose (secondary lactose intolerance is common in Celiac patients because the same part of the intestine that processes lactose is the part that is commonly damaged by the gluten). But she could tolerate milk that had been treated with lacteez.
If you are experiencing difficulty with lactose, for whatever reason, you probably shouldn't be putting butter on your pancakes, I guess.
Before buying the mix I mentioned above, I previously used a recipe in the incredible edible gluten free for kids book (I'd be happy to email you the recipe) for waffles and we often used warmed up raspberry jam instead of maple syrup so that might be an idea. Or buy frozen raspberries, thaw and whirl them in a blender for instant raspberry sauce - you can even mix it right into the pancakes or waffle batter so that the taste is right inside.
If you're still feeling awful at the end of the day, you might also consider your cooking utensils or cooking environment. When my daughter continued to have intermittent reactions despite gluten-free foods and ingredients being used in my kitchen I dug a little deeper and got rid of the wheat-containing shampoos, the old t-fal pans, the colandars (strainers), the cutting boards and we finally achieved pain-free status.
But before we got there, we had to really un-learn a lot of old habits. Like the morning I was putting brown sugar on my daughter's gluten-free corn flakes cereal and poked into a slice of bread that was in the brown sugar - an old trick I'd used forEVER to keep the brown sugar from getting hard... DOH. I felt so bad.
Please persevere. Be a gluten detective. Post your questions here - I'm probably not the best person to answer your questions because I only have my own and my daughter's experience to draw upon - I live in a town of 10,000 people and doctors still tell me my daughter is the only case of Celiac they've ever seen

so I've done this all on my own, through research, reading, trial and error, and alot of patience.
Many hugs...
mamatide