RKB_MD
May 25 2007, 09:59 PM
I recently read a quote from another member:
"Most modified food starch is corn based and ok. If the food starch has wheat in it, it will say so on the label per 2006 food allergen laws"
WRONG!!!!!!!!!
Modified food starch is still a major issue for people who are gluten enteropaths.
This is an ill defined dietary supplement that does NOT require specific definition as to the source. Federal guidlines have NOT been enforced, nor, as written are they enforcable.
The laws set out in 2006 are "suggestions" only, not requirements. Fortunately with our litigenous society, many companies are complying. The specific requirements are NOT enforcable on a Federal level.
Unless otherwise specified (as they are "encouraged" to be) anyone with gluten enteropathy should avoid all ill defined "modified food starches" and should contact the manufacturer to explain, and should demand that that manufacturer specify in writing what EXACTLY the food starch is.
The following are currently FDA acceptable food starch additives: casein, wheat, barley, corn, soybean, millet. Notice 50% of these are not on a gluten free diet. And, most importantly, some of the gluten containing items allow the company to state "Wheat free" without being truely GLUTEN free.
mftnchn
May 25 2007, 10:02 PM
yikes!
darlindeb25
May 26 2007, 03:23 AM
Thank you RKB MD--I have been trying to say the same thing and it seems no one wants to believe me.
The following are currently FDA acceptable food starch additives: casein, wheat, barley, corn, soybean, millet. Notice 50% of these are not on a gluten free diet. And, most importantly, some of the gluten containing items allow the company to state "Wheat free" without being truely GLUTEN free.Very true! I do not believe all of them are on the allergen listing either, so the companies do not have to list what it is, even when the bill does get policed.
Myself, I do not trust "modified food starch" as an ingredient unless I know specifically that it is not gluten. So many of us will feel ill and not beable to figure out why. We can't trust, that's the bottom line.
ravenwoodglass
May 26 2007, 03:29 AM
Thanks for posting this. Hopefully the folks who put so much faith in the FDA will read and absorb.
debmidge
May 26 2007, 03:46 AM
I suppose this would also apply to "maltodextrin?"
Momma Goose
May 26 2007, 05:08 AM
QUOTE(RKB_MD @ May 26 2007, 01:59 AM)

I recently read a quote from another member:
"Most modified food starch is corn based and ok. If the food starch has wheat in it, it will say so on the label per 2006 food allergen laws"
WRONG!!!!!!!!!
Modified food starch is still a major issue for people who are gluten enteropaths.
This is an ill defined dietary supplement that does NOT require specific definition as to the source. Federal guidlines have NOT been enforced, nor, as written are they enforcable.
The laws set out in 2006 are "suggestions" only, not requirements. Fortunately with our litigenous society, many companies are complying. The specific requirements are NOT enforcable on a Federal level.
Unless otherwise specified (as they are "encouraged" to be) anyone with gluten enteropathy should avoid all ill defined "modified food starches" and should contact the manufacturer to explain, and should demand that that manufacturer specify in writing what EXACTLY the food starch is.
The following are currently FDA acceptable food starch additives: casein, wheat, barley, corn, soybean, millet. Notice 50% of these are not on a gluten free diet. And, most importantly, some of the gluten containing items allow the company to state "Wheat free" without being truely GLUTEN free.
RKB MD can you quote your source please.
tarnalberry
May 26 2007, 09:16 AM
I'd like to note that it's 33% of those that aren't on a gluten free diet. Wheat and barley are out, but casein, corn, soybean, and millet are all gluten free.
I too would like to see the source that says that the Food Allergen Labeling Law does not need to be followed.
ravenwoodglass
May 26 2007, 11:03 AM
I thought it might be helpful to post a link to the most recent guidelines by the FDA for food manufacturors. There are a couple things we celiacs need to note, the most important being that while wheat is considered an allergen gluten is not. Just because wheat is not listed does not make it safe for us. Also take particular note of numbers 16 and 18 which deal with the bane of our existence crosscontamination. As to whether the FDA has the time and resources to really police these laws who knows.
http://www.cfsan.fda.gov/~dms/alrguid4.html
broncobux
May 26 2007, 12:52 PM
Folks,
I am the one she is quoting. Iam in the process of contacting the FDA for clarification on this issue.
If possible, please provuide a source that proves my statement is wrong/false.
I will continue to research the matter.
BB
Momma Goose
May 26 2007, 12:57 PM
QUOTE(broncobux @ May 26 2007, 04:52 PM)

Folks,
I am the one she is quoting. Iam in the process of contacting the FDA for clarification on this issue.
If possible, please provuide a source that proves my statement is wrong/false.
I will continue to research the matter.
BB
I'd be interested in what you find out Chris.
broncobux
May 26 2007, 01:19 PM
This is the only thing I found...
<a href="http://72.14.253.104/search?q=cache:qsdeEZfnsF4J:www.fda.gov/ohrms/DOCKETS/dailys/03/jul03/071603/00p-1322-ans0011-vol30.pdf+modified+food+starch+fda&hl=en&ct=clnk&celiac disease=1&gl=us" target="_blank">http://72.14.253.104/search?q=cache:qsdeEZ...;celiac disease=1&gl=us</a>
This letter is from the FDA in 2003 in response to a letter from a consumer 2001.
Obviously, this does not take the new 2006 allergen laws into account.
I trhink we migth be dealing with another "Celiac Urban Legend" here (like vinegar, blue cheese ect)
Unless shown otherwise, I still believe that even food starch from a wheat starch must be disclosed...
Your ball, RKB MD
BB
broncobux
May 26 2007, 01:23 PM
Momma Goose
May 26 2007, 01:38 PM
QUOTE(broncobux @ May 26 2007, 05:23 PM)

Just got home, but at a quick glance, it looks like they are going to require gluten free lableling, or list gluten ingrediences. If so, oh happy day.
ravenwoodglass
May 26 2007, 02:38 PM
QUOTE(Momma Goose @ May 26 2007, 01:38 PM)

Just got home, but at a quick glance, it looks like they are going to require gluten free lableling, or list gluten ingrediences. If so, oh happy day.
I may have read this and the 2006 version of the same thing wrong but if I am understanding it wheat is of course an allergen and must be listed. The same is not being said for gluten. What they are trying to do, and actually have done now is to define what is gluten free for the purpose of labeling. Not to make companies declare gluten ingredients but to enable them to label gluten free items as such.
Momma Goose
May 26 2007, 02:45 PM
QUOTE(ravenwoodglass @ May 26 2007, 06:38 PM)

I may have read this and the 2006 version of the same thing wrong but if I am understanding it wheat is of course an allergen and must be listed. The same is not being said for gluten. What they are trying to do, and actually have done now is to define what is gluten free for the purpose of labeling. Not to make companies declare gluten ingredients but to enable them to label gluten free items as such.
I think you are correct in that.
But baby steps are steps forward. With all the gluten issue in the news, whether it be diet related, medically related or pet related, times are changing.
That's why it's so important to call companies and inquire about the gluten free status of their products. Keep calling peeps.
zansu
May 26 2007, 03:47 PM
And don't forget that the current definition of "gluten-free" that they are looking at is not 100% gluten free. It's mostly gluten-free. Which will actually make it harder to be truly gluten-free, not easier.
lovegrov
May 26 2007, 10:38 PM
RKB MD really needs to return and give us his source for the claim that allergen law is nothing more than suggestions for manufacturers. That's not my understanding at all.
richard
lovegrov
May 26 2007, 10:53 PM
Maybe I'm misunderstanding what was being said, but according to this site the allergen law is NOT just suggestions. And there are criminal and civic penalties.
http://www.cfsan.fda.gov/~dms/alrguid.htmlrichard
darlindeb25
May 27 2007, 03:00 AM
Whether it is or isn't doesn't matter if it isn't being policed.
15. Is there a penalty for non-compliance with FALCPA?
Yes. A company and its management may be subject to civil sanctions, criminal penalties, or both under the Federal Food, Drug, and Cosmetic Act A company and it's management MAY be subject to civil sanctions--that should state WILL be, not MAY be. This is scary in itself, to me.
[Added December, 2005] Is a major food allergen that has been unintentionally added to a food as the result of cross-contact subject to FALCPA's labeling requirements?
No. FALCPA's labeling requirements do not apply to major food allergens that are unintentionally added to a food as the result of cross-contact. In the context of food allergens, "cross-contact " occurs when a residue or other trace amount of an allergenic food is unintentionally incorporated into another food that is not intended to contain that allergenic food. Cross-contact may result from customary methods of growing and harvesting crops, as well as from the use of shared storage, transportation, or production equipment.So no cross contamination issues matter. It matters to us. In this statement though, as long as the company says, "We try to remove all residue", then they are covered by the law. It was only an accident and that's ok.
I have little respect for the FDA. There is a law on the books stating that no pets are allowed in stores selling foods, no I do not have it specifically, yet I know it's there, I have worked in retail. There is a significant fine for allowing pets in stores, other than service animals (seeing eye dogs, etc). Yet here in New York, people bring their pets all the time. You see them in grocery stores, you see them sitting in the child seats in shopping carts and no one does anything about it.
I kept getting spoiled milk from a local grocer. At first, I though I wasn't drinking it fast enough, or maybe the refrigerator was not working properly. Then I realized that nothing else was spoiling, only the dairy products from this local store. I could buy milk in another grocery and have no problems at all. Then I hear others talking about the dairy products in this local store. Finally, I emailed the FDA. The local FDA came into the store and checked the refridgeration and it seemed fine. They checked with the suppliers and found there was no problem with the same products in any other stores. They spoke with the manager of this store and he confirmed the product comes off the truck, directly into the cooler. Yet, I can not tell you how many times I have walked into this store and found dairy products sitting on a dolly in the middle of the aisle, unattended--who knows for how long.
The FDA agent called me and I was shocked at his response. He told me he knows there is a huge problem in this store. He also said he knows it is not the supplier. Then he added that he will not purchase his own dairy products at this store because they have received so many complaints and they know there is a problem. His recommendation to me was to shop elsewhere. He also added that this same store would not be giving refunds any longer because the supplier refused to reimburse them because the fault was not that of the supplier. As of yet, nothing has been done about this store--they still sell spoiled products, they still leave dairy sitting in the aisles and it was June of last year when I first spoke with the FDA.
I'm sorry, but I do not trust them to police this law anymore so than they do so many of the others. The law is only as good as the people making sure it is working. ARE THEY?????
ravenwoodglass
May 27 2007, 03:45 AM
QUOTE(zansu @ May 26 2007, 03:47 PM)

And don't forget that the current definition of "gluten-free" that they are looking at is not 100% gluten free. It's mostly gluten-free. Which will actually make it harder to be truly gluten-free, not easier.
To me that is the scariest part of trying to eat processed food, and the reason why I don't anymore. For those of us who suffered under the US health 'care' system for years mostly gluten free is not gluten free enough. What is even more frightening in this country is that most are not aware that any OTC or script med DOES NOT fall under the guidelines of the allergen labeling laws at all. Gluten need not be disclosed in any med formulation. This makes our scripts when needed even more hazardous than our food.
debmidge
May 27 2007, 04:46 AM
QUOTE(darlindeb25 @ May 27 2007, 06:00 AM)

that no pets are allowed in stores selling foods, no I do not have it specifically, yet I know it's there, I have worked in retail. There is a significant fine for allowing pets in stores, other than service animals (seeing eye dogs, etc). Yet here in New York, people bring their pets all the time. You see them in grocery stores, you see them sitting in the child seats in shopping carts and no one does anything about it.
I see this too in foodstores; only animals to be in there are "working animals" like seeing eye dogs, etc. This is usually a Health Code violation and the store manager should say something to that person. Yesterday I saw woman in Wal Mart with a mini chiaua in her pocketbook hanging from her shoulder.
QUOTE(darlindeb25 @ May 27 2007, 06:00 AM)

I kept getting spoiled milk from a local grocer. At first, I though I wasn't drinking it fast enough, or maybe the refrigerator was not working properly. Then I realized that nothing else was spoiling, only the dairy products from this local store. I could buy milk in another grocery and have no problems at all. Then I hear others talking about the dairy products in this local store. Finally, I emailed the FDA. The local FDA came into the store and checked the refridgeration and it seemed fine. They checked with the suppliers and found there was no problem with the same products in any other stores. They spoke with the manager of this store and he confirmed the product comes off the truck, directly into the cooler. Yet, I can not tell you how many times I have walked into this store and found dairy products sitting on a dolly in the middle of the aisle, unattended--who knows for how long.
See this a lot too; seems like it should be against the law to be this stupid (to keep perishables lingering in aisle like this). Does the manager or owner of this store know that there's a delay getting the perishable to the refrigerator? Is it a new owner?
QUOTE(darlindeb25 @ May 27 2007, 06:00 AM)

The FDA agent called me and I was shocked at his response. He told me he knows there is a huge problem in this store. He also said he knows it is not the supplier. Then he added that he will not purchase his own dairy products at this store because they have received so many complaints and they know there is a problem. His recommendation to me was to shop elsewhere. He also added that this same store would not be giving refunds any longer because the supplier refused to reimburse them because the fault was not that of the supplier. As of yet, nothing has been done about this store--they still sell spoiled products, they still leave dairy sitting in the aisles and it was June of last year when I first spoke with the FDA.
Would this be a Dept. of Health issue for your town? My sister won't go to a certain supermarket in her area in Princeton as they sell milk that wasn't handled properly and is either bad when she buys it or gets bad in a day or two. I find that Lactose brand milk lasts very long - maybe has something to do with the removal of the lactase sugar protein.....
RKB_MD
May 27 2007, 05:29 AM
My first point, and real purpose of posting, was the gross misconception that a "senior" member of this forum was espousing. Specifically, that if not stated, it was "most likely" corn as the source for MFS.
For a disease state, such as ours, only a complete elimination diet is safe.
Don't take chances!
I hope by now that those who were the quickest to jump on this and claim that I was introducing, how was it put - "Another urban celiac myth" have had a chance to fully review the actual governmental regulation (Thank you to the resouceful member who posted the link!).
As others have pointed out, there is lack of specificity in the guideline that allows companies to make things WHEAT-free, without being giladin/gluten-free (I state the giladin aspect to divert from the whole corn gluten conversation).
In addition, the weak enforcement of the regulation allows for statements on labels in the "Contains" portion that are not, when the actual ingredient list is read, consistent. I personally have read labels that did not have "Wheat" in the Contains line, yet the ingredient list included wheat.
I'm not a Libertarian who says: "Don't trust the Governement!" I'm simply another celiac who has spent his life reading labels. I too have been encouraged by the 2006 FDA guidelines, but I wanted to convey to those around here - especially the newer members - that the guidelines may not always be followed.
Tim-n-VA
May 27 2007, 05:50 AM
QUOTE(RKB_MD @ May 27 2007, 09:29 AM)

My first point, and real purpose of posting, was the gross misconception that a "senior" member of this forum was espousing. Specifically, that if not stated, it was "most likely" corn as the source for MFS.
For a disease state, such as ours, only a complete elimination diet is safe.
Don't take chances!
Everyone with this disase/condition takes chances if they ever eat something they didn't grow themselves and control each step to the plate.
I haven't seen anything to contradict the "most likely" for corn. In a perfect world we would completely avoid something so vague. In the real world we sometimes get in a bind and modified food starch is a relatively low risk. We all have to decide how we make decisions with imprecise terms such as "most likely" and "relatively low riks".
Just curious, does "RKB-MD" mean you are a medical doctor, from Maryland, or something else?
psawyer
May 27 2007, 07:00 AM
"Modified food starch" is, in fact, usually corn. This is why you need to ask about it, if the manufacturer is not one with a gluten disclosure policy (such as Kraft has). If you automatically reject all foods with modified food starch as an ingredient you are rejecting many, many more safe foods than ones with wheat. If in doubt, ask.
darlindeb25
May 27 2007, 09:07 AM
Yeah Deb: I see this too in foodstores; only animals to be in there are "working animals" like seeing eye dogs, etc. This is usually a Health Code violation and the store manager should say something to that person. Yes, it is a health code violation, initated by the FDA. In Michigan, I never saw a dog or any other pet in a food store. I worked the service desk at Kmart and we never allowed any animals, other than service animals. When I worked the Kmart service desk here in Babylon, a woman came in with her dog and I told her she had to remove thew dog from the store. She told me she was leaving and I repeated the dog had to be removed and that I had just seen her coming into the store. She told me I did not get paid enough working at Kmart to tell her what to do with her F***** dog! So, I went to the manager and he told me, "As long as the dog's butt does not touch the cart, we don't care!" Then he says, "Sweetheart, this is Long Island, get used to it!"
Does the manager or owner of this store know that there's a delay getting the perishable to the refrigerator? Is it a new owner? He doesn't care. He is not a new manager and it isn't a new store. It has been here in E. Islip for years, it's a devision of A&P called Waldbaum's. If I had treated customers in Mich the way they treat customers here, I would have been fired. I've been told by friends that yes, it isn't right, but they have never known any different. Sad, isn't it.
tarnalberry
May 27 2007, 10:25 AM
QUOTE(zansu @ May 26 2007, 04:47 PM)

And don't forget that the current definition of "gluten-free" that they are looking at is not 100% gluten free. It's mostly gluten-free. Which will actually make it harder to be truly gluten-free, not easier.
Guys, come on. It's been explained before, and I'll explain it again. And no amount of wishful thinking will make it go away.
In a packaged product, there will *never* be anything but a lower limit for a definition of the term gluten free; that term will never truely mean zero.
Why? Because to enforce the rule, you have to be able to measure compliance. To measure compliance you have to use instruments. Instruments do not have perfect precision. They may be completely accurate (always return the same results), but will never be perfectly precise (no error) and there will always be something smaller that they can't test. Combine that with making it 'reasonable' to test for - cost and time, both - and it will never be 0ppm, or 0ppb, or 0ppt.
Think about it. ...
You have an instrument that could test for 0ppm (million). Well, that still might not actually be 0 gluten, because it could have 499ppb (billion) of gluten. But there's no instrument that can detect that little gluten. Do we not have a rule or any testing at all? Or maybe in 20 years there is one, but it's 100 times the cost, making all food labeled gluten free an order of magnitude more expensive (that $5 loaf of bread is now $40) - that just won't fly.
What if that instrument comes down in price, and you can measure 0ppb now for a reasonable price. Well, that still might not actually be 0 gluten, because it could have 499ppt (trillion) of gluten. But now there's no instrument that can detect *that little* gluten. Still no rule for testing? Maybe in another 20 years there will be one, or maybe there won't be. Maybe it'll be prohibitively expensive again.
Engineering and compliance monitoring is the limiting factor here on why we will never have "true-0" limits.
corinne
May 27 2007, 04:48 PM
Tarnalberry - thanks for your comments. I teach analytical chemistry and I have sophomore chemistry students come to me and say there is no X in their sample. There could be X in their sample, but the amount may be below what we can detect with our method. Even a lot of college chemistry students don't seem to grasp this concept.
There is no such thing as 100% gluten free unless you check every single molecule in a sample and that can't be done anywhere by any method and then you can only say that particular sample was gluten free. Instead, the companies report that the amount of gluten is less than the amount the method can detect. We have to decide if that amount is harmful.
Of course, there is the other issue of enforcement of regulations and that is a personal judgement call about the companies.
RKB_MD
May 27 2007, 05:15 PM
In addition to the excellent comments that have been posted, the key thing that people seem to be missing is that while the FDA states that starch, in foods, is usually corn - IT MAY NOT BE CORN! It may be a giladin containing substance that will make any celiac sick. It is the statement that I have read in several threads that had a very nonchalant attitude about MFS that raised my ire.
Would any of us knowingly eat Kikoman's soy sauce on crab rangoon and wash it down with a Sam Adams? NO!
The wheat brewed beer and the crab rangoon are obvious, the Kikoman's because we have learned that it is not pure soy sauce and it is brewed over wheat.
Therefore, why assume that MFS is "safe" when it may not be unless it is completely defined. Defined the way some of the "good guys" like Kraft brand specify the content.
As a physician (yes that's what the MD in the sign-on name is all about), I would never tell a patient to smoke cigarettes, drink excessively, or throw caution to the wind when it comes to non-adherence to an appropriate diet.
blueeyedmanda
May 27 2007, 05:19 PM
I did not learn the soy sauce was gluten free on here, it says wheat right on the bottle.
blueeyedmanda
May 27 2007, 06:06 PM
very nicely put momma goose
j_mommy
May 27 2007, 06:10 PM
I just want to say.....as a new person here the "senior" posters have been great!!!!
In my experience they have always said what they believed and have ALWAYS ended the post with "always do you're own investigating and call the manufactor!"
I think everyone kind of understands this is just like any other buyer beware situation...you always need to do your own checking.(unless a poster shares the email ect) most people back up anything with fact!!!!!
darlindeb25
May 27 2007, 06:15 PM
You stormed onto this site like a bull in a china shop.I disagree. I do not feel he stormed in here at all, he just stated a simple fact that some of us do not want to hear. I totally agree with him and I have been stating that for some time. We can't trust our govt to protect us from gluten. It will never happen. DKB just gave us a strong reminder of that fact.
mandasmom
May 27 2007, 07:18 PM
QUOTE(Momma Goose @ May 27 2007, 09:44 PM)

RKB MD
You stormed onto this site like a bull in a china shop. A more gentile approach would have been more received.... as in bedside manner.
It is obvious that you have information to share. Share it well and deliver it well. Just my thoughts.
I know I sound like a broken record---but risk is implied in all that we do--inlcuding the food we eat. Each of is repsonsible for assuming as much risk as we feel comfortable with. I , for one, am willing to take a chance now and then with foods that I beleive to be safe. I never ever throw caution to the wind, but I do eat out several times a week and often eat at freiends homes. I am willing to take those chances in return for a fuller life..not the right attitude for everyone but the right one for me!!
tarnalberry
May 27 2007, 07:22 PM
QUOTE(RKB_MD @ May 27 2007, 06:15 PM)

...
It is the statement that I have read in several threads that had a very nonchalant attitude about MFS that raised my ire.
Would any of us knowingly eat Kikoman's soy sauce on crab rangoon and wash it down with a Sam Adams? NO!
The wheat brewed beer and the crab rangoon are obvious, the Kikoman's because we have learned that it is not pure soy sauce and it is brewed over wheat.
...
What you read as a nonchalant attitude may be someone carefully picking their battles. You can fight every last thing in life - and leave yourself drained and frustrated wondering why life is always a challenging battle. Or you can make informed decisions on your battles - such as knowing what companies will identify the source of their MFS, knowing what countries are less likely to use wheat for MFS, and what foods are less likely to use wheat for MFS - when you need to have that battle at all.
As for your two examples - neither of those reference MFS. The first clearly lists wheat on the label (it doesn't use MFS at all), and the second specifically notes barley in the manufacturing process as well.
I do fundamentally agree with you - we cannot assume that just because most MFS is from corn means all of it is. But we do have to educate ourselves into such a position that we can make informed decisions and pick our battles wisely. In many cases, the choice would rightly be to avoid the battle (and hence the food) but that's not necessarily true in *every* case imaginable.
RKB_MD
May 27 2007, 07:54 PM
Try again Ms Goose Moderator.
If you recall I did not storm onto this forum - I opened, many moons ago with the "Celiac Sprue and Doctor too" thread - or did you already forget that?
I do wish to thank those who have expressed understanding and support for my position. A gluten free lifestyle is hard enough without taking chances where those risks are not needed.
My comments were not heavy handed - they were in reaction to someone on your forum who claims to be an expert who was repeatedly advocating throwing caution to the wind when it came to MFS based on an FDA statement that most "starch" is "likely to be corn" - an assertion that has been, and through much clinical evidence, proven otherwise.
How dare you accuse me of not having a bedside manner - you do not know my clinical practice, nor would you. Shall I make comments in a public forum denegrating how you have raised your children without any knowledge along those lines?
If you look at your general membership, you will see that there are people who are "allergic" to non-antigentic items who are not being given any help in determining what is wrong with them. Do you think, on top of those extremely unhappy and ill people you need to be misinforming the newbies who may have finally had their medical conditions figured out by the average moron MD who is given all of 3-6 min to see and treat every patient or who have most likely been seen by a nurse, not a physician?
No wonder I was "warned" by several different physicians to avoid this forum and "get out while I still had a chance". (Would you like me to forward the private emails I received from them to prove this?) In addition to that, my original pediatric gastroenterologist, back in 1994, when he excitedly ran to see his former patient who was a resident in his hospital, warned me to "avoid the Sprue group in xxx city" as "they pretty much are a bunch of nuts". Yet I stuck around on this forum, learning where I could, contributing as I could as well.
The problem with this disease is that it has so much misinformation involved, so much ignorant medical care, and so many "hangers on" who do not have the disease.
Go ahead - shun yet another doctor, especially one who suffers along with you, battles the same problematic, ignorant waiters, chefs, food coorporations along with you, and deals with the same issues on a day to day basis.
Good work with the attitude and comments Ms Goose. Maybe this Forum needs a different Moderator.
Oh wait - let me post my "signature":
Diagnosed 1970 almost at the point of death at the 2nd percentile for height and weight.
My blood sample is the "Reference Standard" on record for the HLA typing bank at the University of Missouri for Celiac Non-tropical Sprue. (For those who do not know, this is the International Standard Bank for HLA typing.)
IGA positive for giladin reactivity.
Gluten-free lifestyle and HEALTHY!!!
broncobux
May 27 2007, 10:12 PM
QUOTE(psawyer @ May 27 2007, 08:00 AM)

"Modified food starch" is, in fact, usually corn. This is why you need to ask about it, if the manufacturer is not one with a gluten disclosure policy (such as Kraft has). If you automatically reject all foods with modified food starch as an ingredient you are rejecting many, many more safe foods than ones with wheat. If in doubt, ask.
Exactly my original point PSAWYER!
However, Dr. Guns a Blazing apparently thought Iwas telling a newbie to eat everything that ha s MFS because its all 100% corn based and thus gluten free - which is, of course, absurd...
I merely said that most MFS is corn based, which is 100% accurate in the USA.
Hopefully, this will not incite another argument on the definition of "most".
debmidge
May 28 2007, 02:18 AM
I'd like to take this moment to point out that the price of corn is skyrocketing and that although many companies would not want to cross the MFS line using wheat (which will be less expensive than corn) instead of corn, there's always the possibility that they could change to wheat suddenly without updating their label and without updating the info that the Cust. Service Reps use to answer our gluten-free questions. There's also those who would be unscrupulous enough to hide that info so they won't have to manufacture a new label....and then would pay the fine when the FDA orders the recall. A fine would probably be cheaper than the cost to use corn AND change the labels.
At that point, yes, they are in violation of the law but when & how could we tell? Gee I'm not paranoid!
debmidge
May 28 2007, 02:34 AM
QUOTE(RKB_MD @ May 26 2007, 12:59 AM)

I recently read a quote from another member:
"Most modified food starch is corn based and ok. If the food starch has wheat in it, it will say so on the label per 2006 food allergen laws"
WRONG!!!!!!!!!
Modified food starch is still a major issue for people who are gluten enteropaths.
This is an ill defined dietary supplement that does NOT require specific definition as to the source. Federal guidlines have NOT been enforced, nor, as written are they enforcable.
The laws set out in 2006 are "suggestions" only, not requirements. Fortunately with our litigenous society, many companies are complying. The specific requirements are NOT enforcable on a Federal level.
Unless otherwise specified (as they are "encouraged" to be) anyone with gluten enteropathy should avoid all ill defined "modified food starches" and should contact the manufacturer to explain, and should demand that that manufacturer specify in writing what EXACTLY the food starch is.
The following are currently FDA acceptable food starch additives: casein, wheat, barley, corn, soybean, millet. Notice 50% of these are not on a gluten free diet. And, most importantly, some of the gluten containing items allow the company to state "Wheat free" without being truely GLUTEN free.
I happen to agree with this statement and I will definitely speak to people I know who are in pharamaceutical industry and who work for the FDA in the capacity of inspector and I will make an attempt to try to find out more information.
Remember, an ounce of prevention is worth a pound of cure and that should be our mantra as regards this subject.
darlindeb25
May 28 2007, 03:29 AM
RKB's voice on this forum is just as important as anyone else's. His opinion is just as important as momma goose's. I totally agree with RKB and always have. Lovegov has the same opinion as you momma goose and that's fine, it's your opinions. RKB refuses to fall prey to these companies who always state, "We will always state the origin of the products we use!" I do not trust Kraft anymore than I trust anyone else. These companies change ingredients at the drop of a hat.
As I have stated over and over, this new law is only as good as the policing of it and I guarantee, it is not being properly watched over. Just as was already stated, it is cheaper to pay a fine than to change everything. A $500 fine is nothing to a multi million dollar company! And no, I do not know for a fact that the fine is $500. Just as none of you know for a fact that the new law is being enforced.
None of us are safe just because a company says we can trust them. The old saying goes, "Hurt me once, shame on you, hurt me twice, shame on me!" Famous last words are, "Trust me!", and how many of us have been hurt by that term before.
It upsets me so much in this forum when newbies are given info that is not necessarily good info. They think the moderators are God and would never give them bad info. Mods are just people like the rest of us. You do not need any special qualifications to be a moderator and quite often, it shows. Too many mods are overbearing and feel their advice is the only advice. I'm sorry that I am stepping on toes here, but sometimes your toes need stepped on to get your attention. Momma goose, you have your opinion and RKB has his, his is just as important as yours, just as yours is as important as his. Opinions are opinions.
Fiddle-Faddle
May 28 2007, 04:17 AM
QUOTE(Momma Goose @ May 27 2007, 09:44 PM)

RKB MD
You stormed onto this site like a bull in a china shop. A more gentile approach would have been more received.... as in bedside manner.
It is obvious that you have information to share. Share it well and deliver it well. Just my thoughts.
Um, it seems to me that all he did was post an opinion contrary to yours. I don't see that as a good excuse to make the comparison to a bull in a china shop, nor to make a snide cut at his profession.
And the word "gentile" means "non-Jewish." I assume you simply don't know how to spell "gentle;" otherwise, it looks like you are making a religious statement.
ravenwoodglass
May 28 2007, 04:38 AM
First off I hope RKB will continue to post. He is a knowledgeable person who could actually help a bit in getting other doctors more knowledgeable and I pray that the nasty responses that he has gotten from a few of the folks here do not scare him away again for months.
One thing that has not been mentioned in this issue is this-
We are now a global society, the food we eat and the components of them are not always made in the US. We also import a great deal of food. Corn right now may be the most common form of MFS in the UNITED STATES, however in Europe and many other countries the most common starch to use for MFS is Wheat. In addition they consider this MWS to be gluten free, we don't. Many companies source out of country for the stuff it uses, and if you think they don't then certainly the pet food fiasco proves that, (and who actually thinks the melamine in the rice and wheat gluten didn't make it into human food?).
RKB was trying to bring some intelligent info that is very needed. It is a shame that someone who is trying to give info gets so much antagonism from a few others. It is really sad that many are so prejudiced against the medical community that anything they say has to be challenged in this way. People are entitled to give their opinions. And I for one value everyones opinion, if it does not agree with mine I might say so, (and do often on alcohol, too often in many's opinions most likely) but I don't attack.
darlindeb25
May 28 2007, 04:43 AM
(and who actually thinks the melamine in the rice and wheat gluten didn't make it into human food?).This is very scary to me and the first thing I said when it all started was, "How can we be sure this isn't in the general public's food?" I live in an area with so many different nationalities represented. Some of the foods on the grocery shelves are things I have never heard of before and many are from other countries. It is scary!
ravenwoodglass
May 28 2007, 04:46 AM
"It upsets me so much in this forum when newbies are given info that is not necessarily good info. They think the moderators are God and would never give them bad info. Mods are just people like the rest of us. You do not need any special qualifications to be a moderator and quite often, it shows. Too many mods are overbearing and feel their advice is the only advice."
This is one thing I agree about totally. It only bothers me though when that info may be pertinent to them but not to others. Many forget that celiac is a disease that little is still known about. The person speaking may not have a problem with certain things but their presentation may be different from mine. Blanket statements about the safely of certain things and the idea that since whatever it is does not present a problem for them it is safe for all are dangerous and can be quite confusing to someone who is new to the gluten free world. For folks who are trying to puzzle things out through elimination it can make that task almost impossible.
darlindeb25
May 28 2007, 04:51 AM
Many forget that celiac is a disease that little is still known about. The person speaking may not have a problem with certain things but their presentation may be different from mine. This is so very true. Just the fact that so many feel you must have certain genes to be celiac, that you can't become celiac otherwise. I do not think we know enough yet to be placing judgment. They know the genes make it probable, yet they do not know much else, as of yet. Celiac disease has exploded in the press, yet it still is very young in it's research.
debmidge
May 28 2007, 05:07 AM
QUOTE(ravenwoodglass @ May 28 2007, 07:38 AM)

We are now a global society, the food we eat and the components of them are not always made in the US. We also import a great deal of food. Corn right now may be the most common form of MFS in the UNITED STATES, however in Europe and many other countries the most common starch to use for MFS is Wheat. In addition they consider this MWS to be gluten free, we don't. Many companies source out of country for the stuff it uses, and if you think they don't then certainly the pet food fiasco proves that, (and who actually thinks the melamine in the rice and wheat gluten didn't make it into human food?).
You hit a nerve on this one: the importation of even minor ingredients can be a nightmare to regulate. The container could indicate tapocia starch but what if it was processed in a wheat-laden facility in some 3rd world nation? Now I know this isn't quite the FDA topic we started on but the policing of companies would then multiply and who's to know if the FDA can even get to so many.
I happen to live in area inhabited by a lot of people who observe strict Kosher law. It is against the law to label something as Kosher when it is in fact not. The New York newspapers often run stories about stores that were selling something as Kosher when it was not and the store or manufacturer gets fined. That's a drop in the bucket. What about the times that that store or manufacturer wasn't caught? I'm sure it happens. Who's to know or tell? The Rabbis probably know who did nor did not get proper certification so the culprit gets caught that much quicker. But how can an agency (FDA) find everything out all the time when there are so many sources involved. And again, a fine is small compared to the profit they can make until they are found out.
Additionally, I find it unconscionable that a manufacturer not know what is in his product, even if he sub-contracts the minor ingredients.....I have heard that on phone when asking if something is gluten-free.
KG in FL
May 28 2007, 05:39 AM
QUOTE(debmidge @ May 28 2007, 08:07 AM)

You hit a nerve on this one: the importation of even minor ingredients can be a nightmare to regulate. The container could indicate tapocia starch but what if it was processed in a wheat-laden facility in some 3rd world nation? Now I know this isn't quite the FDA topic we started on but the policing of companies would then multiply and who's to know if the FDA can even get to so many.
I happen to live in area inhabited by a lot of people who observe strict Kosher law. It is against the law to label something as Kosher when it is in fact not. The New York newspapers often run stories about stores that were selling something as Kosher when it was not and the store or manufacturer gets fined. That's a drop in the bucket. What about the times that that store or manufacturer wasn't caught? I'm sure it happens. Who's to know or tell? The Rabbis probably know who did nor did not get proper certification so the culprit gets caught that much quicker. But how can an agency (FDA) find everything out all the time when there are so many sources involved. And again, a fine is small compared to the profit they can make until they are found out.
Additionally, I find it unconscionable that a manufacturer not know what is in his product, even if he sub-contracts the minor ingredients.....I have heard that on phone when asking if something is gluten-free.
Actually, from what I interpret from this thread, it is the topic started. Or at least what I get when leaving out the sniping. Does this whole thread boil down to the fact that we are never 100% sure of every single ingredient in our foods no matter what the label says? I think I can agree with that. There are plenty of examples out there of this happening on occasion.
Now the dogs in stores part I think I read too fast, I don't know what that pertains to. Nasty hygine in stores? Lack of following rules? Both true sometimes I think.
Isn't this the whole issue - or am I missing something?
And I hope the MD is not offended away. And my personal MD is no help to me at all, but that doesn't mean all MD's are worthless! haha I don't even think he came on too strong here. After reading some of the other threads comments that are "allowed" by the moderators, the MD was mild!! It appears some posters are "allowed" to voice strong opinion, with no one raising an eyebrow, and others are slammed for it.
Oh, and I knew what MommaG meant when she wrote "gentile"... Not the ethnic word. She meant the different pronunciation of gentle. I don't think anyone would be offended by that. How do you spell that one? The same? or Gentele? It could be gentile? No... Now I have to look up something else!!
I think all the information shared is so valuable though, it's worth sifting through.
hathor
May 28 2007, 06:23 AM
QUOTE(RKB_MD @ May 27 2007, 09:29 AM)

In addition, the weak enforcement of the regulation allows for statements on labels in the "Contains" portion that are not, when the actual ingredient list is read, consistent. I personally have read labels that did not have "Wheat" in the Contains line, yet the ingredient list included wheat.
I have no information on the modified food starch issue being debated. However, this statement jumped out at me since I have read the law. The law requires the allergens to be disclosed in
either the ingredients list or a "contains" statement. If the ingredients list includes wheat, the law does not require a contains statement showing wheat. So labels like this do not prove "weak enforcement" of the law (which is a statute, not a regulation). Not to say, of course, that there isn't actually weak enforcement
The statute, in pertinent part and with my emphasis:
SEC. 203. FOOD LABELING; REQUIREMENT OF INFORMATION REGARDING ALLERGENIC SUBSTANCES.
(a) In General.--Section 403 of the Federal Food, Drug, and Cosmetic Act (21 U.S.C. 343) is amended by adding at the end the following:
``(w)
(1) If it is not a raw agricultural commodity and it is, or it contains an ingredient that bears or contains, a major food allergen, unless either--
``(A) the word `Contains', followed by the name of the food source from which the major food allergen is derived, is printed immediately after or is adjacent to the list of ingredients (in a type size no smaller than the type size used in the list of ingredients) required under subsections (g) and (i); or
``(B ) the common or usual name of the major food allergen in the list of ingredients required under subsections (g) and (i) is followed in parentheses by the name of the food source from which the major food allergen is derived, except that the name of the food source is not required when--
``(i) the common or usual name of the ingredient uses the name of the food source from which the major food allergen is derived; or
``(ii) the name of the food source from which the major food allergen is derived appears elsewhere in the ingredient list, unless the name of the food source that appears elsewhere in the ingredient list appears as part of the name of a food ingredient that is not a major food allergen under section 201(qq)(2)(A) or (B ). My reading of the law, i.e., "or" means "or," is the same as that of the FDA:
FALCPA requires food manufacturers to label food products that contain an ingredient that is or contains protein from a major food allergen in one of two ways.
The first option for food manufacturers is to include the name of the food source in parenthesis following the common or usual name of the major food allergen in the list of ingredients in instances when the name of the food source of the major allergen does not appear elsewhere in the ingredient statement. For example:
Ingredients: Enriched flour (wheat flour, malted barley, niacin, reduced iron, thiamin mononitrate, riboflavin, folic acid), sugar, partially hydrogenated soybean oil, and/or cottonseed oil, high fructose corn syrup, whey (milk), eggs, vanilla, natural and artificial flavoring) salt, leavening (sodium acid pyrophosphate, monocalcium phosphate), lecithin (soy), mono-and diglycerides (emulsifier)
The second option is to place the word "Contains" followed by the name of the food source from which the major food allergen is derived, immediately after or adjacent to the list of ingredients, in type size that is no smaller than the type size used for the list of ingredients. For example:
Contains Wheat, Milk, Egg, and Soyhttp://www.cfsan.fda.gov/~dms/alrgqa.htmlI'm not trying to be pendantic here. I thought it was important to stress that folks should not rely simply on the absence of allergens disclosed on a "contains" statement.
You need to read the ingredients list, also!
hathor
May 28 2007, 06:26 AM
QUOTE(KG in FL @ May 28 2007, 09:39 AM)

Oh, and I knew what MommaG meant when she wrote "gentile"... Not the ethnic word. She meant the different pronunciation of gentle. I don't think anyone would be offended by that. How do you spell that one? The same? or Gentele? It could be gentile? No... Now I have to look up something else!!
I'll spare you that task. The word is "genteel."
Momma Goose
May 28 2007, 06:28 AM
QUOTE(hathor @ May 28 2007, 10:26 AM)

I'll spare you that task. The word is "genteel."
As a self-pronounced terrible speller... it is now corrected.
darlindeb25
May 28 2007, 06:55 AM
Now the dogs in stores part I think I read too fast, I don't know what that pertains to. Nasty hygine in stores? Lack of following rules? Both true sometimes I think.KG in FL--this was simply an example of how lax the policing is of these FDA rules. A law is only as good as those who are making sure the law is truly in effect.
If the FDA will continue to allow a store to sell spoiled dairy products to the general public and advice people to not buy their dairy products at said store, then what makes you think they are making sure the companies are following the rules for the allergen law? The dairy problem pertains to almost everybody and the allergen law is for a much smaller group of that same public.
I definitely feel we should not be telling others, especially newbies, it is ok to use certain products, just because there is a law on the books. We should always call and ask and then use our own judgment on the answer we received.