Hi,

I was diagnosed with Coeliac Disease 3 years ago now. I went from 110lbs to 78lbs in a matter of 3 weeks, vomitting black bile, dirhea (sp?), disease and extreme pain all over including abdominal pain. After 3 weeks in hospital I was diagnosed after many tests including full biopsies. 3 years later I hardly eat, NEVER eat Glutton and now weigh 141lbs and that went up from 132 from just a month ago. Also, my blood showed that I'm some how getting glutton in my system again. I just moved back to California and really need some help losing the weight and getting this back under control. Any doctor in San Francisco that can help me that you know of or how on earth I'm gaining when I'm not eating. Thanks! Limygal

If you're hardly eating, your body goes into "famine" mode. In this case, your body thinks it's starving, so it will hold onto anything you consume as fat for energy storage. To correct this, you need to take in enough calories per day in small frequent meals spaced out, and you need to make sure your are eating the *right foods*. The idea is a complete lifestyle change, dieting doesn't work and leads to weight cycling, which can make it harder to lose weight in the long run. You need lots of fibre (brown rice, gluten free oats if you feel safe eating them, and veggies) and "good" fats like olive oil and Salmon. You might want to try an Omega 3 supplement.

Avoid most gluten-free replacement products, they are usually very high in carbs, low in fibre, and may contribute to weight gain and insulin resistance.

The majority of your diet should be fish, veggies, and good fats. Keep a food diary.

You should also check with your doctor to be tested for a medical cause of unexplained weight gain. Autoimmune thyroid disease is much more common in Celiacs. Other less common reasons for weight gain are PCOS and Cushing's Syndrome, among others.

Hope you figure this out!

This is why your body is not working properly. This is the most imortant thing right now. If you post what you're eating (also include supplements and soaps, shampoos, cosmetics etc), maybe we can help you figure out where the gluten is coming from.

I agree that you need to find the source of gluten. I don't think you'll ever feel better if you don't deal with that. You just moved so I'm assuming you've changed brands of many of your foods. It's probably time to look at the brands you are now eating and starting making some calls. Or post the new brands here and I'm sure someone's made the call already and can tell you if it's gluten-free or a company that has CC issues.

Also remember that pre-daignosis....your body was not getting the nutrition from your food! now that you are mostly off gluten your body is getting more nutrition and there fo rmore calories!!! I have heard and read that many people gain weight on the gluten-free diet. I have to be careful due to being on teh chunky side...so that I don't gain more weight...even though I'm eating healthy!!!

As a previous poster suggested maybe you could post what you've been eating and using(ie shampoo, toothpaste ect) so maybe we could help you look into any hidden gluten!

Good luck and hope you feel better soon!

Hi,
I also gained weight after I stopped eating gluten (119lbs to 150lbs, yikes). I think we may have the side-effect of gluten intolerance where your body blocks out nutrients when you eat gluten. So, if you are eating gluten, you're thin, and you gain weight when you don't. (Which you're supposed to do). Please eat gluten free, don't starve yourself.

Is this true, anyone else?

My weight has leveled out, and I have just become more used to being a bit heavier than I was. I know it's really hard to get rid of your skinny pants, beleive me that was painful for me. But now I feel healthy, I don't have so many crazy blood sugar issues, and that's what counts. but I feel for you, I know it's not fun to have your body change dramatically.

By the way, I'm new here, Hi everyone. I've been diagnosed for 4 years now.

Letitia