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Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Parents of Kids or Babies With Celiac Disease
kimber
Hi everyone

I haven't posted on this board in some time, but come here often to read the posts, get recipes etc

My ds, zachary, will be 4 on Halloween, and was diagnosed with reflux 2 weeks after birth
At 6 mnth I switched from b/f to alimentum and it was a HUGE mistake...once we strarted solids things only got worse

Zach was dairy/soy free but out of desperation and after keeping a food journal, I decided to try him on a gluten-free diet and within a few days responded with less tantrums, more energy etc...I was thrilled
2 weeks later, I don't know what happened, but he completely went downhill
I then realized he might be reacting to corn and eliminated that as well....more problems until I read about fructose intolerance and tried him on an a everything free, low fructose diet

Zach has been to several allergists and has never tested + to anything...we have been to 7-8 GI's and he has had b/w for celiac's etc and all has been neg...GI's pretty much blew me off
Zach is small for his age, but thankfully he is gaining...he is roughly 31 pounds

For the past few days he is eating basic white rice products, chicken and some pears...I don't know what direction to turn?
If I try gluten, even oats...he reacts...dairy/soy...he reacts?
If he has banana...grapes...more reactions
Is anyone in the same boat?
Is it possible to have a gluten and fructose intolerance....
I am very anxious and stressed out that I have been trying to figure this out for almost 4 yrs

Any advice GREATLY appreciated!
Hope all is well with everyone else
Kim
AndreaB
Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.
kimber
Thanks so much...I am open to any suggestion
I live in Norther NJ

Good luck on your end, Kim


QUOTE(AndreaB @ Jul 15 2007, 05:17 PM) *
Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.

EmmaQ
Once the gut is irritated food intolerances increase - my thought.
My advice would be to look into The Carbohydrate Specific Diet.
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