I have been gluten free now for about two months, i had a biopsy that came out fine, I had Hpylori but after two horrid bouts with some wicked antibiotic blends that seems to be gone.
I have had chronic loose stool and chronic abdominal bloating and pain most of my adult lfe, but it was tolerable.
This past year I have lost control of my bladder, had my gall bladder removed, been tested for lupus, and gone thru tests for liver disease, and colon disease, I am going in for a DC and hystoscpy (not sure of spelling) on Tues due to problems with my uterus, and I am diabetic, my blood sugars were uncondtrolable with all meds, I am taking meds for just about everything )last year at this time was just one med) I am falling apart. Well I went gluten free, my loose stools became more normal almost to constipation. my blood sugar is leveling out and I am feeling a bit better.
I have these clear blisters that itch like crazy and show up just about everywhere, the dr said it was excema, those have lessened but I still get them.
I dont know if I am gluten intollerant or Celiac, and I wont pursue an positve test, if I do, then I am labled with a disease that could make it hard to get insurance, and two... I feel better not eating it, so who cares if I have a label or not, I dont.
I have found that gluten is in so much it is no wonder so many of us are having symptoms, mderation is the key to food, and gluten is not in moderation any more, its in excess.
So I will continue to be gluten free just because I feel better. I also have tried to limit ingredients to 5, with no partial hydration. And I refue to eat chemical sugar.
I eat organic raw cane juce dehydrated.
Since I have eliminated so many of thise things I have lost wieght with out trying, and feel better.
So I could be called a Diabetic Celaiac but insted I call my self a consious eater.
If the pain isnt enough or problems from eating foods is not enough for you to change your diet, you will develop more problems I am sure of it, even if you are not diagnosed with celeac or other diseases.
I felt compelled to post this after reading so many post of folks who are unsure... 90% of the time the doc's are giving you and EDUCATED GUESS, it seems that every doc I went to thought it was something different and none ever did anything to make it better, I am not saying you should not seek medical attention, just understand they can only give you test results and an educated guess, or they can tell you its stress and send you out the door with out even trying.
YOU need to take your problems in your own hands, if eating gluten makes you sick, then in my oppinion you should stop, if it doesnt then you need to ask more question and get more assistance.
We think we need Dr's to give us the last word, I used to, but if it feels better go with it!
I hope I dont sound negative, but I know I was once where some of you are, and until I trusted myself and did not depend on others to clairify or agree with my claim, I was in a limbo, and it was not helping any.
I am hoping I helped, even if its just one of you, can feel a bit more confident in making choices that can better your life, no matter what anyone else says.
Gluten Free is good for me =).
Full Version: Not Sure If I Am Celiac And Dont Want The Test
Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Pre-Diagnosis, Testing & Symptoms
You don't need an official diagnosis if you don't want one. Dietary response is indicative of a problem.
The blister you are getting could be dermetitus herpetiformis. If you're still getting them you may want to double check personal care products for cc issues.
The blister you are getting could be dermetitus herpetiformis. If you're still getting them you may want to double check personal care products for cc issues.
QUOTE(tntownley @ Aug 1 2007, 09:13 PM) 
I have been gluten free now for about two months, i had a biopsy that came out fine, I had Hpylori but after two horrid bouts with some wicked antibiotic blends that seems to be gone.
I have had chronic loose stool and chronic abdominal bloating and pain most of my adult lfe, but it was tolerable.
This past year I have lost control of my bladder, had my gall bladder removed, been tested for lupus, and gone thru tests for liver disease, and colon disease, I am going in for a DC and hystoscpy (not sure of spelling) on Tues due to problems with my uterus, and I am diabetic, my blood sugars were uncondtrolable with all meds, I am taking meds for just about everything )last year at this time was just one med) I am falling apart. Well I went gluten free, my loose stools became more normal almost to constipation. my blood sugar is leveling out and I am feeling a bit better.
I have these clear blisters that itch like crazy and show up just about everywhere, the dr said it was excema, those have lessened but I still get them.
I dont know if I am gluten intollerant or Celiac, and I wont pursue an positve test, if I do, then I am labled with a disease that could make it hard to get insurance, and two... I feel better not eating it, so who cares if I have a label or not, I dont.
I have found that gluten is in so much it is no wonder so many of us are having symptoms, mderation is the key to food, and gluten is not in moderation any more, its in excess.
So I will continue to be gluten free just because I feel better. I also have tried to limit ingredients to 5, with no partial hydration. And I refue to eat chemical sugar.
I eat organic raw cane juce dehydrated.
Since I have eliminated so many of thise things I have lost wieght with out trying, and feel better.
So I could be called a Diabetic Celaiac but insted I call my self a consious eater.
If the pain isnt enough or problems from eating foods is not enough for you to change your diet, you will develop more problems I am sure of it, even if you are not diagnosed with celeac or other diseases.
I felt compelled to post this after reading so many post of folks who are unsure... 90% of the time the doc's are giving you and EDUCATED GUESS, it seems that every doc I went to thought it was something different and none ever did anything to make it better, I am not saying you should not seek medical attention, just understand they can only give you test results and an educated guess, or they can tell you its stress and send you out the door with out even trying.
YOU need to take your problems in your own hands, if eating gluten makes you sick, then in my oppinion you should stop, if it doesnt then you need to ask more question and get more assistance.
We think we need Dr's to give us the last word, I used to, but if it feels better go with it!
I hope I dont sound negative, but I know I was once where some of you are, and until I trusted myself and did not depend on others to clairify or agree with my claim, I was in a limbo, and it was not helping any.
I am hoping I helped, even if its just one of you, can feel a bit more confident in making choices that can better your life, no matter what anyone else says.
Gluten Free is good for me =).
I have had chronic loose stool and chronic abdominal bloating and pain most of my adult lfe, but it was tolerable.
This past year I have lost control of my bladder, had my gall bladder removed, been tested for lupus, and gone thru tests for liver disease, and colon disease, I am going in for a DC and hystoscpy (not sure of spelling) on Tues due to problems with my uterus, and I am diabetic, my blood sugars were uncondtrolable with all meds, I am taking meds for just about everything )last year at this time was just one med) I am falling apart. Well I went gluten free, my loose stools became more normal almost to constipation. my blood sugar is leveling out and I am feeling a bit better.
I have these clear blisters that itch like crazy and show up just about everywhere, the dr said it was excema, those have lessened but I still get them.
I dont know if I am gluten intollerant or Celiac, and I wont pursue an positve test, if I do, then I am labled with a disease that could make it hard to get insurance, and two... I feel better not eating it, so who cares if I have a label or not, I dont.
I have found that gluten is in so much it is no wonder so many of us are having symptoms, mderation is the key to food, and gluten is not in moderation any more, its in excess.
So I will continue to be gluten free just because I feel better. I also have tried to limit ingredients to 5, with no partial hydration. And I refue to eat chemical sugar.
I eat organic raw cane juce dehydrated.
Since I have eliminated so many of thise things I have lost wieght with out trying, and feel better.
So I could be called a Diabetic Celaiac but insted I call my self a consious eater.
If the pain isnt enough or problems from eating foods is not enough for you to change your diet, you will develop more problems I am sure of it, even if you are not diagnosed with celeac or other diseases.
I felt compelled to post this after reading so many post of folks who are unsure... 90% of the time the doc's are giving you and EDUCATED GUESS, it seems that every doc I went to thought it was something different and none ever did anything to make it better, I am not saying you should not seek medical attention, just understand they can only give you test results and an educated guess, or they can tell you its stress and send you out the door with out even trying.
YOU need to take your problems in your own hands, if eating gluten makes you sick, then in my oppinion you should stop, if it doesnt then you need to ask more question and get more assistance.
We think we need Dr's to give us the last word, I used to, but if it feels better go with it!
I hope I dont sound negative, but I know I was once where some of you are, and until I trusted myself and did not depend on others to clairify or agree with my claim, I was in a limbo, and it was not helping any.
I am hoping I helped, even if its just one of you, can feel a bit more confident in making choices that can better your life, no matter what anyone else says.
Gluten Free is good for me =).
Makes perfect sense to me. Consider yourself fortunate and good luck.
Tom
QUOTE(AndreaB @ Aug 1 2007, 08:03 PM)
The blister you are getting could be dermetitus herpetiformis. If you're still getting them you may want to double check personal care products for cc issues.
Thank you both for your resposnse, I am also new at this and I suspected DH with the water blisters, but what did you mean I need to check personal care product for CC?
Could you elaborate please =) thanks!
Tina
Tina,
I'll step in if you don't mind. Personal care products can be just as important as food. Shampoos, lotions, toothpaste, lipstick, lip balms, make-up, all have the possibility to find their way into your mouth which can trigger the gluten response.
Although, people do not eat shampoo, but it is highly likely that it can get into your mouth during a shower.
In addition, shared toasters, old wooden spoons, wooden cutting boards, scratch non-stick pots and pans all can hide gluten.
If you need some names of gluten free products to get you started, feel free to ask.
I'll step in if you don't mind. Personal care products can be just as important as food. Shampoos, lotions, toothpaste, lipstick, lip balms, make-up, all have the possibility to find their way into your mouth which can trigger the gluten response.
Although, people do not eat shampoo, but it is highly likely that it can get into your mouth during a shower.
In addition, shared toasters, old wooden spoons, wooden cutting boards, scratch non-stick pots and pans all can hide gluten.
If you need some names of gluten free products to get you started, feel free to ask.
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