QUOTE (Momma Goose @ Jan 19 2008, 07:56 PM)

Here is some information regarding gluten intolerance vs. allergy.
http://www.celiac.com/articles/179/1/Aller...n-MD/Page1.htmlThe Celiac Blood Panel (antibody testing) can be unreliable as can the biopsy through hit and miss sampling. The only sure test for Celiac Disease, gluten intolerance or gluten allergy is a positive dietary response. If you remove gluten from your diet and you feel much better, you have your answer. It's sort of like beating your head against a wall....it feels so good when you stop.
What specific test did you have? Do you have the results?
In July 2007, I had a blood test (anti-endomysial? spelling) done which came back negative. I was unable to schedule an endoscopy until the week after Thanksgiving, and I knew I had to stay on wheat until the biopsies were done. So I did, and really did it up...I couldn't wait for the test to be done so I could stop eating wheat...that's how terrible I felt!
My symptoms include: chronic fatigue (verging on narcolepsy really), brain fog, joint and bone pain, excessive gas, occasional constipation, depression/anxiety, severe PMS, tingling feet and hands (I also have carpal tunnel), sleep problems, and more (including a miscarriage).
Through the Xmas holidays, I started going gluten-free with a big push in the past few weeks, I am feeling better already, not perfect (I am not 100 percent gluten-free), but when I do have too much, the worst symptoms come back in force. For some reason, organic bread did not really seem to bother me, but I am unsure at the moment whether I had just cut back enough to handle the wheat at all.
I still have to work on whether rye and barley make me feel as bad. I have an inkling that rye does not make me feel too good. My food allergy tests were completely negative.
My first grader is lactose intolerant since age one or earlier? He is being evaluated for a learning disorder. His lactose intolerance started after a bad virus (so it seemed), all within one month of introducing wheat to his diet. So I am really going through all of this to determine whether both he and I are gluten intolerant.
Sadly, medical tests have gotten me nowhere in the past year, only that gluten-free makes me feel better. I would like a definitive diagnosis for insurance reasons and for my son. So I feel like I need to try other things.
The Univ of Chicago Celiac Disease Research Center lists under its Research pages a study by Dr. Bana Jabri that seems to focus on whether gluten sensitivity is indeed a early and independent stage that could precede celiac disease (if I am reading it correctly). Would love to learn more about it.