Hello all
I think I am reallly glad to have found this board. I am really hoping also that some of you have some insight for me as well as the others I have read.
First of all, I have been recently diagnosed with Intractable migraines, as I have suffered with debilitating/excruciating headaches for almost 2 months now. They are actually getting much better, but different since going to an accupuncturist a few times now. The neurologist has rotated me through a veritable pharmacy of "samples" trying to stop the headaches, and NOTHING has worked, aside from the Vicadin which knocks me out, if it doesn't make me vomit first. Since going to the accupuncturist, I have been released from the severity of the headaches, although they are still "there". At least I can function; I am a full time teacher, and wife/mother of four children and one tall hubby. The accupunturist has also helped me realize that a lot of my symptoms are sinus related; I have "electrical charge" pain all through my face, and my sinuses are always hurting, although not infected. This is what he feels is causing the migraines. So, he has given me some homeopathic things to use which ease the symptoms, such as menthol. Now, the Neurologist confirms the sinus issues by letting me know that my blood work has revealed that I am "allergic" to gluten. This allergy which may have been "developed", or "triggered" by a traumatic surgery I had in October, may be the cause of the sinus issues, the headaches, and also the nausea/diarrhea/constipation problems that I have had for several days/weeks. For several years, I have also suffered from milk allergies which essentially causes the same symptoms, as you can damage the villi inside your intestines which make the ability to eat dairy worse and then the villi heal and you can eat some again until it gets better again. It all makes sense now.. or maybe I just want it to make sense? Soooo. My question is this, have any of you had this migraine issue, and have you been told that you are "allergic" to gluten, and if so, did you go "gluten free". and did it help????
I am willing to try anything... hey, I tried accupuncture... but my dh thinks I'm crazy...... He has IBS, and I think this could help him too.
Thank you for all your help.
I appreciate it.
Oh, any books you would recommend?

WOW!!!!
I went to my doctor about the headaches and they put me on Allegra... I took myself off of it since it didn't seem to work. After having headaches EVERY day for almost a year, I went to a chiropracter/acupuncturist and my headaches changed, although they didn't go away. I did have some neck issues, which she helped resolve, and some sinus issues, which she resolves short term with acupuncture.

That being said, I put myself on an elimination diet to see if I was allergic to anything that would still be causing my headaches. I did it for a week, and by the end of the week (which, was headache free!!!), I had narrowed it down to wheat/gluten. I remained gluten-free for a month before I could get in to see my DR and get a blood test... which came out negative, as expected. The thing for me was that my headaches went away. I don't need a blood test or a biopsy to tell me gluten isn't good for me. The bad part of that is that I may never know... celiac or allergy?

The past few weeks, I have had some pretty nasty sinus pressure, and I've started taking a homeopathic combination that is really helping. I am also staying away from dairy, since I am starting to see a correlation with the two. I have really noticed a difference.

The point of all this is: If you are wondering, try it. The proof is in how you feel. If it works, hey, you'll feel better. If it doesn't, you've ruled something else out. Either way, you can't lose. For some it takes a matter of days, for some a few weeks. Make sure you give it a reasonable amount of time. But if you are allergic to gluten, as your DR says, you really should stay away from it. That may very well be the cause of your sinus problems, as allergies and sinus problems are so closely related.

Hope that helps!!!

Oh yeah, I am currently reading "Living gluten-free for Dummies" by Danna Korn. It's pretty informative and has some recipes in it. I have to say though, when I realized what was making me feel bad, it wasn't so hard to cut it out.

Liz

many here who have had migraines in the past found theirs to go away when they went gluten free. it doesn't work for everyone, and I presume that they did a sinus CT and all that as well. mine got worse (when I moved, long after I went gluten free) and I'm on daily preventatives, and I'm not the only one here who didn't find it was connected, but many did, so you may find it helps.

if you had blood work that showed you were gluten intolerant, however, you should be going gluten free regardless of anything else. (ironically, I know that dairy gives me headaches, and I've been completely dairy free for over three years.)

I haven't had a migraine or even an aura since I went gluten-free 5 years ago. Unless I get glutened. I 'lived' with them for years and can't say I miss them.

Me too - Had terrible migraines until I went gluten free, none since. And to prove it, this week I had a terrible migraine - turned out some tablets I'd been taking had gluten in.

I've had migraines for years, just started getting auras in the last few. I didn't notice fewer migraines when I went gluten-free; however if I accidentally poison myself with gluten, I almost always get a migraine from that. Bottom line is, for me anyway, I don't think there's any correlation.

Re: the Vicodin - migraines rarely respond to narcotics. Has your neurologist tried you on a prophylactic migraine med long term? Most of them take at least a few weeks to take effect, which I know can seem like an eternity (I've been there), but for a lot of people can offer significant relief. I take a daily migraine prophylactic, and I have a triptan "rescue" med for when I get a migraine. Best combo I've used. The triptan knocks me out, so I don't take it unless I absolutely have to and if I am somewhere I know I can konk out, but it almost always kills the migraine.

Hang in there. Migraines bite the big one but you'll find something that works for you. Don't hesitate to find a second neurologic opinion, too.

I still get my migraines. But not nearly as frequently as I used to before going gluten free.

I used to get migraines 2-3 times a week and they were very intense.

Now I get one maybe 2 a month and they are most definitely sinus/environmental allergy related.

I am too reading Living Gluten Free for Dummies, I am learning so much from that book and this forum,

unfortuneatley, i am still getting the migraines. I am gluten free, for 3 months about, and so i am wondering if it is from something else, but am cutting out dairy and say, starting sunday, gotta do it at the beginning of the week, since we plan our meals out weekly(easier for me to get home and start cooking if its already decided on what we are having).

so we will see if it is just that i have not given it enough time, or if it is something else causing the headaches.