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Celiac Disease and Gluten-Free Forum (Home) > Celiac Disease and Gluten-Free Forum > Celiac Disease - Pre-Diagnosis, Testing & Symptoms
Lisa16
After reading a number of posts, it occurs to me that one of the most common questions people have is "Can symptom x be gluten-related?" Could we start a list of symptoms actually experienced by people with gluten-sensitivity or celiac disease? This is where some of the expertise from older members could really come in handy for new folks-- it might save a little time and be reassuring. I sometimes found myself reading back a fair ways before finding what I was looking for. And it might help somebody who is trying to figure out what they have:

I can start with the ones I know and/or suspect are classic in adults. You can just put "chronic" in front of all of these--


-migraine headaches-- (no OTC pain reliever could touch these)

-skin problems that do not respond to the expected treatment (rashes, dermatitis, welts, unresponsive "shingles')

-whitish ulcers in the mouth

-white lines on fingers or hands and sunken fingerprints (see post below)

-recurring yeast infections in women

-insomnia

-joint pain (especially in knees and hips)

-muscle spasms/ pain

-nerve problems (tingling, numbness-- esp. in legs, hands and feet)

-depression, anxiety, panic attacks

-diarrhea-- mild to severe (and multiple episodes, even upwards of 25)

-stinky gas, bad cramping (think medieval torture), extreme bloating

-vomiting and nausea

-abdominal pain (left side for me-- you can feel like things are "rounding a corner.")

-a strong reaction within 30 minutes of eating somthing with gluten

-lethargy (low energy)

-feeling hungry all the time

-malabsorbtion (seeing floating bits of veggies or oil slicks in the wc)

-anemia

-underweight/ overweight (I saw here that 40% are overweight from malnutrition)

-infertility

-low libido



And I know this is just a start. I hope people will add (or subtract) and elaborate to make it more complete!






kenlove
List is a great idea---

I would add:
night sweats or general sweating profusely
dry heaves
loss of muscle mass & hormones
no appetite

To the nerve problems I would add the shakes. I was treated for Parkinsons for 2 weeks before they figured out the celiac. Couldnt focus on my left leg it was shaking so much.

Ken


QUOTE (Lisa16 @ Jan 25 2008, 06:12 AM) *
After reading a number of posts, it occurs to me that one of the most common questions people have is "Can symptom x be gluten-related?" Could we start a list of symptoms actually experienced by people with gluten-sensitivity or celiac disease? This is where some of the expertise from older members could really come in handy for new folks-- it might save a little time and be reassuring. I sometimes found myself reading back a fair ways before finding what I was looking for. And it might help somebody who is trying to figure out what they have:

I can start with the ones I know and/or suspect are classic in adults. You can just put "chronic" in front of all of these--


-migraine headaches-- (no OTC pain reliever could touch these)

-skin problems that do not respond to the expected treatment (rashes, dermatitis, welts, unresponsive "shingles')

-whitish ulcers in the mouth

-white lines on fingers or hands and sunken fingerprints (see post below)

-recurring yeast infections in women

-insomnia

-joint pain (especially in knees and hips)

-muscle spasms/ pain

-nerve problems (tingling, numbness-- esp. in legs, hands and feet)

-depression, anxiety, panic attacks

-diarrhea-- mild to severe (and multiple episodes, even upwards of 25)

-stinky gas, bad cramping (think medieval torture), extreme bloating

-vomiting and nausea

-abdominal pain (left side for me-- you can feel like things are "rounding a corner.")

-a strong reaction within 30 minutes of eating somthing with gluten

-lethargy (low energy)

-feeling hungry all the time

-malabsorbtion (seeing floating bits of veggies or oil slicks in the wc)

-anemia

-underweight/ overweight (I saw here that 40% are overweight from malnutrition)

-infertility

-low libido



And I know this is just a start. I hope people will add (or subtract) and elaborate to make it more complete!

missy'smom
The Celiac Sprue Association website has a good starter list of symptoms. It was enough to convince me!
Lisa16
QUOTE (missy'smom @ Jan 25 2008, 10:35 AM) *
The Celiac Sprue Association website has a good starter list of symptoms. It was enough to convince me!


Thanks! I will transfer it here (below).

I am also hoping people will contribute some of the non-classic symptoms that they have experienced too. Just take a look at the question posted above this one! Somebody is asking about what the symptoms are. This forum is so important to people-- it would be nice to tap into the expertise here and have all the info in one place.

Celiac Sprue Association list of symptoms:

What are the symptoms? How long have they been present? How often do they occur?

Abdominal cramping/bloating
Feet (Reduced fat padding)

Abdominal distention
Flatus (Passing gas)

Acidosis
Gluten ataxia

Appetite (Increased to the point of craving)
Mouth sores or cracks in the corners

Back pain (Such as a result of collapsed lumbar vertebrae)
Muscle cramping (Especially in the hands and legs)

Constipation
Night blindness

Decreased ability to clot blood
Skin (Very dry)

Dehydration
Stools (Loose? Hard? Small? Large? Foul smelling? Floating? Clay, Light tan or Gray-colored? Highly rancid? Frothy?)

Diarrhea (See Stools below)
Tongue (Smooth or geographic - looks like different continents)

Edema
Tooth enamel defects

Electrolyte depletion
Weakness

Energy loss
Weight loss

Fatigue




B. The Patient's Emotional State

What is the patient's emotional state? Is it consistent throughout the day? When and for how long do the symptoms occur?

Depression

Disinterested in normal activities

Irritable

Mood changes

Unable to concentrate




C. Additional Conditions

What else is involved? Other diseases? Other organs?

Amenorrhea

Iron-deficiency anemia

Bone disease

Hyperparathyroidism




D. Symptoms in Children

How is the child developing?

Slowly

Not gaining weight

Losing weight



Under age three:

Growth failure

Diarrhea

Projectile vomiting

Abdominal bloating/distention



Older children:

Crankiness

Difficulty concentrating

Irritability

Personality changes

Poor memory


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