I did not have the formal testing because frankly, I had already been through several tests for other things, hate going to the Dr., and by the time we figured out that this was probably the answer to my problems, I had already gone gluten-free so it seemed pointless to test and I sure as heck am not going to ingest gluten to tell me what I already know.
There are so many 'markers' or symptoms to Celiac that I have, that I have not doubts about a diagnosis. Aside from the GI issues which go right down the line with everyone else's, and being a type 1 diabetic, I also have Raynaud's Phenomenon, peripheral neuropathy, carpel tunnel, hip and joint pain, unexplained weight gain (lost it all whenI went gluten-free) anxiety & depression, etc.
And then yesterday in my reading I learned that 'geographic tongue' is a marker of Celiac and/or food intolerances, which I have had all my life and that bed wetting(yep, and I could share some wonderful horror stories about how my family dealt with this issue) is also a side effect of food inolerances.
Also read a teaser here (would love it if someone could explain what this all about and why this happens?) about why our fingernails don't have the 'moon'???? Well I checked and most of mine don't and neither do my daughter's who also has symptoms. The rest of the family have them.
Also rec'd a call from the manufacturer of my glucometer last night checking up on how my replacement monitor was functioning. Nice man. He told me that the company had a website with lots of interesting stuff and a great diabetic recipe section. (I'm sure he thought he was going to give me really useful information.) I countered with "Are there gluten free recipes included in the section?" He was clueless. I explained a little about what Celiac disease is and that 1 in 10 type 1 diabetics is also a Celiac. He had never even heard of the disease(To be fair neither had I until 2 months ago) so I guess I wasn't the only one to get an education yesterday.
