i have been perousing through the topics and reading all these topics about help diagnosing people's results etc., and finding it overwhelming - particularily because my paed didn't give me the values......she called me and said they were positive for celiac and they were referring me to the gastro - called later in the day and said not to stop the gluten yet as specialist said the values were borderline........

so if a result is borderline does it mean there is just an intolerance there and not the disease - i guess what i am getting at is something should be making the results abnormal - so if not celiac then what?

my ds is 2.5 and having many symptoms - we are seeing allergist as allergies are almost a positive just not sure exactly what they are yet and getting results from a sleep study done as ds has major issues with sleeping etc.,

thanks for your time,

beflustered mom of logan

Any result in the positive level is positive. If you are going to chose to biopsy, and that is your choice, you do need to stay on a full gluten diet. If you are chosing not to biopsy then you can go gluten free. However if you are doing the biopsy and have been gltuen free and are challenging for a month or two and you become very ill please be sure to let your doctor know right away.
Also biopsies are hit and miss so even if the doctor says that the endo was fine you should still do the diet for at least a couple of months strictly to see if it helps.