QUOTE (Dyan @ May 2 2008, 07:53 PM)

Thank you OBXmom. For some reason my dd cannot get the jist of 1-10 scale. So I changed it to 1-5 so she could have an exact middle. That didn't seem to help much. I have told her over and over taht she is the only that knows how she feels and saying things like "I dunno" only hurt her. Anyway I read on Enterolabs website that 3/4 of Celiacs are also sensitive to yeast. So we now had 3 variables to try out, dairy, rice cakes, and yeast.
We are 2 days without rice cakes and she has less pain then when eating rice cakes. (I really wish she understood 1-5) I would be interested in your words that go along with your scale. But, I am feeling good about the rice cake test, since she is taking yogurt for lunch instead. But then I am also disappionted to find out that we have been being so careful with every single thing she eats or drinks, only to find out I serving her gluten every single day.
I know, it is terrible to think you could be so careful and still be serving gluten. Today I read in The Gluten Free Bible that you shouldn't worry so much about disclaimers from companies if gluten isn't in the actual ingredients, but that seems contrary to what lots of folks around her say. And when your child is suffering, you have to keep searching.
That is interesting about the yeast, I'll have to look into that. The foods my son has reacted to are dairy, soy and corn, and they seem to be really common culprits from what I have read here. I removed eggs about the same time we switched rice cakes, so I am not positive about that, but they may be a no no for us, too.
I think a scale of 5 is probably enough. My son helped come up with the words, and some of ours are a bit redundant, but here are some words you could see if your daughter likes:
1 - I can hardly feel it.
2. Not a lot of pain but you can't miss it
3. I'm thinking about it all of the time.
4. Very bad but I can still play
5. I can hardly play.
You know, looking at our scale for the first time in a while, what makes me sad is that we never, ever hit zero. Hopefully one day soon.