Wednesday from New Orleans
Aug 14 2008, 09:43 PM
QUOTE (flourgirl @ Jul 2 2008, 10:11 AM)

I get the rash anywhere and everywhere. I've had several flare ups, and it seems there is no pattern, shows up in new places as well as old. It does not mirror both sides of the body on me. There is no place left that I have not had a rash.
For a while the break outs were getting smaller.....smaller areas and smaller blisters. I had a major glutening a few weeks back (still haven't figured out from what). Not only did I do a major backslide healthwise, I had a huge outbreak of DH. I'm hoping to never have to go through this again. I feel like I'm starting all over.
My dermatologist didn't think my rash looked like DH so I tried various topicals and switched to unscented dye free soap and laundry detergent with no success. I didn't understand why I got the rash only in spots covered by clothing until I searched symptoms and kept finding Celiac and DH in the search results and read about pressure points.
My Gastroenterologist had included a test for Celiac in a series of tests but didn't mention it to me,and his staff wasted an extra month when the lab didn't have enough blood samples to perform the test. They kept telling me the results would be "another week" until I called the lab myself and learned the truth. By then I had learned about DH online and requested that my dermatologist test for it because of a family history of autoimmune diseases: thyroid disease, diabetes, liver disease, heart trouble, diverticulitis.
My DH is always mirrored to a degree but more severe on one side. Solorcaine spray and Mometesone give me some temporary relief.
Diagnosed 8 months ago at age 49 and DH was almost gone until I ate Batman Special Edition dark chocolates for weeks thinking I had read the bag and that they were safe. Anyone have Cutaneous Sarcoidosis granulomas at the same time as DH?