I have only been gluten-casein free about a week now. (I've started yawning again.) My problem has been that I'm just not tired-in fact I'm wide awake sometimes I only sleep 3 hours a night. The next day of course I'm washed out! Very fatigued! RLS stocking feet-hot legs-it seems as soon as I start to fall asleep I get a hot-flash/nightsweat then I get up to use bathroom, get a drink of water and try again. I can tell if I'm glutened because my feet turn cold-also casein seems to make RLS worse. It is very hard for me to understand how eating something (gluten-casein)can in turn make your body unable to function properly! Almost all of my symptoms are nuero--I'm hoping to get back to work soon, I've been on disability since April with "Profound Fatigue". For those of you with primarily nuero symptoms how long does it take to feel strong again.

I also take Vitamin B-12 injections--and then I get tired---I swear I feel as though I have not been sleepy/tired/drowsy for the longest time. In my efforts to self-diagnose I found the term "wired fatigue" does anyone else feel this? Besides me, and if you have does it go away with the GFCF diet.

I have been experiencing the fatigue and nerve pain. Being celiac and having very little GI symptoms, I have now realized I'm dealing with other issues. I am waiting on results to see what my vitamin levels are. My ferrin and iron were fine, but now I believe my B12, B1, and/or Vitamin D are a little off. To stop the RLS I am currently taking a Advil PM for the pain and to get some sleep (that is the only pain reliever I take). With a good 8 hours rest I am able to get helps me get thru the next day. I believe my issues are the lack of absorption in the small intestine - now I'm seeking help to prove/disprove that.

Jennifer

I spent the last three years of my life totally tired. I was unable to work a normal job also. When I realized it was the gluten that made me have to take naps I did not really care how it worked, I just wanted to join the world of the living again.

Everything you put in to your body has an effect on it. I am sure that you would have a strong reaction to eating drain cleaner whether you understood how it worked or not. You probably have a strong reaction to poison ivy, some people do some people do not. For me I know that my life sucks and is barely livable when I choose to eat gluten.

When you are off the stuff for a few weeks ( and the brain fog starts to lift) just read as much as you can find on the web and you will be able to understand some of how it works. It is complicated but interesting to see how all the chemicals react in us and not in many other people.

For now just stay away from gluten the same way you would stay away from a poison ivy salad with drain cleaner dressing.

Keep it simple!
One more mile